Recent content by Kerbear

I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do. I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...

The left tricep he made sure i knew which one and did not do emg testing on it. He said he did not agree with the previous testing said their numbers did not match their reporting so he did it himself. He tested my left bicep, left upper leg, and lower and then did the same on right he also did...

It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr. When I read through posts I see a very common theme the g is very...

Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions. My last postings were about my frustration with the care I was receiving. I asked the very questions...

Through MDA in Macon I was referred to a very experienced Dr and he conducted his own emg .. My fourth... And said he did not agree with my previous Dr and also had a muscle biopsy scheduled within 30 days. We feel so confident now that no matter what the final answer is he will find it and tell...

You guys are so helpful, thank you so much. I am going to do both ...

No nothing is going to be undone and after reading all of the messages here with Nikki's being exactly what I think happened I have let that appointment go down as being overlooked. I am trying to keep my perspective in tact because things have really progressed since October. I may never be...

We go to Emory

Thanks for the insight, no I do not want to start over and had not even considered what that would mean. I am just going to ask a couple questions and be specific and keep it to the most important. Our aunt has moved in and is such a great help. She has survived lymphoma and cared for our...

All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...

Four years before conversion seems accurate to me personally I had been given a dx of pls, and then I have had 3 emgs and at my last clinic visit there were obvious signs of both umn and lmn my results from the speech pathologist and pulmonologist had alot of change from the visit in October. I...

I have not experienced pain up until the last 3 months or so, my neck and shoulders have been really bothering me so the Dr ordered an MRI of my c spine and lower lumbar basically the results show mild degenerative changes and facet joints arthropathy lordosis mild signal loss and tarliv cysts...

I guess i see things my own way, the walker isbto keep me from falling. I don't do a whole lot of walking these days. As for progression I don't understand 100% what all the tapping pulling etc etc that is done the main thing is for me I cannot climb stairs at all and cannot get up and down...

We recently had a our first visit with my care team, and it really helped us. It is so nice to have a plan and a place to ask real questions and get real answers. I think it has restored ourbhope strength and courage after a long and stressful 3.5 years. My attitude has completely changed. I...

Me too, I meet my care team today, hoping to get a lot of good information.... I am over the hump I think .. Finally told family and friends and its a real load of our backs, ppl have offered so much help so my husband can continue working. Someone has to pay the bills.