Recent content by keptfreeinhim

Loralie, I tried to send you a personal message through this site, but they said you have your account set up not to accept personal messages. I was able to accept you as a friend - contact. So you might be able to do me now. Try to set up your account to receive personal messages and I can...

Loralie, You are walking a different path now and need all the help you can get. I am here whenever you need someone to share with. The position you find yourself in can be a very lonely one. I think your husband has the right to know what is happening to him. If he has a mild form of...

sharonca, I'm sorry you have to deal with ALS. I understand your fear of Pick's and FTD when you forget a word. I think we all fear Alzheimer's or some other form of dementia when we find ourselves forgetting. Often it is just because our lives are so stressful. My husband had some bad falls...

judylyne, FTDP-17 is the only frontotemporal dementia that is exclusively hereditary. The others have anywhere from a 10% to 50% chance of being hereditary. I understand your concern. We have six children and grandchildren that I think about. That is why I need to stay involved with both FTD...

BethU, We handled it the best we could under the circumstances. We were able to keep him home until the end, but as each day went on it became increasingly more difficult. My children didn't have a normal childhood. The younger three never knew their father when he was "normal". They were...

shrimpbox73 So as not to distract from this site, I would recommend you check out this site for info on FTD and ALS - http://www.ftd-picks.org/?p=diseases/ftdmnd . They have some helpful information. Beyond that the book, What If It's Not Alzheimer's?: A Caregiver's Guide to Dementia (Updated...

Al, Look this is not that important to my recovery process. I just thought I could be of some help, but I don't want to cause problems with your site or hi-jack for it another purpose. Nor do I want special permission to participate. I will just look for another forum where I can be an...

I will look for a group that is primarily for frontotemporal dementia then. Blessings, Patricia

Am I on the wrong site? I'm sorry it frightened you. I'm not sure what you are saying though. I didn't know there was an acceptable and a non-acceptable way to represent FTD and ALS. They are what they are. Everyone is affected differently. There are no two cases that will present the same way...

Cindy, I'm sorry. I didn't realize. I understand and thank you for removing it. Patricia

Hello, It has been almost a year since I was on this site last. My husband died on December 6, 2007 after fourteen years of FTD and one year of ALS. I am finally beginning to come out of the "fog" of my grieving. I have started a blog, a website, and a Zazzle account to help spread the word...

ALS and frontal temporal dementia Lee, My heart goes out to you. I know so much of what you are dealing with. I only posted once before on this site and it was in regards to the two diseases your husband has. My husband had dementia since he was 45 and then at the age of 58 he began showing...

Hello, First posting. My husband began symptoms of dementia age 45. He is now 59 and has probable frontal temporal dementia. His father and uncle both had a similar dementia. One month ago husband was also diagnosed with ALS, probably Bulbar form. He has had speech problems for almost a...