Recent content by KennethC

This will be my last post. I think you have been right that this is not ALS or variants. It's just too fast progressing. December 22 I had a flu shot, just on a whim. About two weeks later my leg symptoms started with odd feelings and weakness. Then all the other problems I've reported...

The GP saw the atrophied muscles and got me an expedited appt. with another neurologist for this Tuesday. As always, thanks for your time Nikki.

I'm close to having two drop feet. Already have to high step it to get feet to clear ground. Lost 20 pounds of muscle in six weeks. I have true Fasciculations in the parts that are atrophying...only a long wait to the EMG. UMN clinical test was clean, but LMN damage only means PMA. I'm having...

Is PMA relevant to this forum as a form of ALS? Things have worsened and now it's looking like a fast moving form of PMA.

Nikki, I was just doing that! Amazingly they're getting me in to my PCP at 2:15. I really wasn't walking that well yesterday, but today I'm having to use that 'high marching step' to keep from tripping. Shoe soles drag the ground otherwise. Strange weakness feeling behind the knees too. (I...

Can barely get feet off the ground now. Anyone heard of both feet having foot drop at the same time, like within a week? That looks like what's happening now. Basically in a month of (noticed) leg weakening, I've gone from fully capable to in a wheelchair (soon). Is that too fast for ALS...

Good stuff, thanks Mike. Unfortunately, time will tell. Will update.

Thanks again, Nikki. I have an appointment with another neurologist early March. And the planned EMG March 23. I will go see my PHP. Need to talk about anti-anxiety meds or antidepressants or something. any favorites? Let's say I wake up one day soon with drop foot. Should I go the the...

He said he had no suspicion of ALS. But he also thought upper mn damage would already be evident. And that's just a wild assumption. He said he had worked in an ALS clinic, but that patients he saw were normally 6 months or more into symptoms. 'Why so late to get there,' my dear wife asked...

Hi Nikki. That's interesting. It's possible he was dumbing down the description for me, since he was trying to get out of there. My muscles that lift the foot, and calves are weakening for sure. Seem to be shrinking too. It's too much to hope that the twitching and fascis are just...

Thanks again, Christy. Did you have CIPD? I've been wishing for some numbness or burning or some sensory that could indicate it's not ALS. Emory isn't taking new patients to their neuro unit apparently. By the time I get in anywhere, to somewhere with competence I'll be so far gone...

Thanks Mike. I may not have a new onset. I may have been affected for months without knowing it. Who can say when onset starts? Does the amount of time in progress affect how widespread the muscle loss is? The best explanation I've seen about systemic and how EMGs detect problems because of...

Yes. Both at the appointment and from my body. Thanks for asking. I understand the main sticky posted here now. It's true, from the moment that your parts don't work any more. Like my left foot that has just lost its lift. The sticky posted here is the 'definitive' way to know you have ALS...

Better, that's a great story. I'm so glad for you that things worked out. Thank you for sharing it. It's so hopeful it's like a dream to me at this point. Will update when I know more.

Thank you, Tillie. God how I pray you are right. With all the constant twitches and fascics in my feet and calves, I've clearly got either ALS or BFS. Seeing the neuro tomorrow. My life hinges on this one chance...