Recent content by KenG

I greatly appreciate your insight, Nikki. Thank you so much for taking the time to read my anxiety-ridden venting and giving your honest advice! I recall reading that the C9 mutation is present in I think 40% of fALS cases as well as something like 15% of sALS cases. This is making me worry...

I can just see this all spiraling downhill as we've had so much bad luck in our family lately and I'm incredibly anxious. I don't know what would happen if I did test positive for C9 or another gene. I am currently taking 3 different anti anxiety/depression medications but I have been for over...

Ok so I'm a 23 year old male. And I know this thread may seem ridiculous. I have really really tried to not let my anxiety get the best of me and post the typical "Am I getting ALS?" thread, but after several months I've caved. I really hope I'm not offending anyone by sharing my possibly...

Please read the sticky in this topic if you haven't already. You are just being paranoid if it has only been a week; there's no need to worry! Although I don't have much experience, I have NEVER heard of ALS symptoms starting all at once like that. Best, Ken

All very valid opinions. Your/his choices should also be based on your sense of urgency. When I was depressed, I needed a solution as quickly as possible and so, while I didn't necessarily seek out medication, I immediately scheduled an appointment with a psychiatrist and a counselor. In...

4tloml - May I ask what dose he is taking? My dad was taking about 200 of ubiquinol and 200 of CoQ10 for a while. Not sure what he's currently taking. I had read an article about treatment with ubiquinol a while ago and the doses were as high as 800-1000. Thanks!

You are probably right, Tillie. I didn't really think of it that way, but either way, Benzos only last 4-6 hours and so must be continually taken, so an SSRI may be a preferable option. But you are correct, don't take my word for it, talk to the doctor. It is probably also always a good idea...

Prozac is the oldest most-studied and longest half-life anti-depressant, so that's usually the go-to for anti-depressant prescriptions, as it's very forgiving if you miss a couple consecutive doses. Depression and anxiety can be related, but usually they are two different problems. My father...

I was under the impression that CoQ10 and ubiquinol act as an antioxidant and cofactors in the mitochondria for a bunch of different processes. I find it surprising that they would tell you to get off of it considering it acts as yet another antioxidant, just like E and D. Interesting. Anyone...

Hi everyone. I was just curious about your familiarity and experience with ubiquinol. For those who are unfamiliar with it. It is simply the reduced form of CoQ10, meaning it has two added electrons, making it the "active" form of CoQ10. This allegedly makes it much more bioavailable to the...

Thank you all so much for your input. It's so nice to discuss things with people that understand. Too often I feel that those around me have no idea what this journey is like. I suppose I haven't introduced myself. My name's Ken, I'm a young first-year college grad fresh out of Pitt and I'm...

If there is a way to edit the post I haven't found it. My phone autocorrected: indebted soon = on depression

My father was diagnosed with ALS about 1 year ago. He is currently transitioning into the state of requiring an electric wheelchair full time. I'll try to keep this post brief. The news was obviously devastating for all of us; and my dad was put indebted soon and anxiety medication. This is...

I haven't looked into it too much; but I have tried to get my father involved with it. I know that it is rather involved and takes some effort to follow. From the top of my head I know it involves taking several antioxidant supplements as well as massaging/consuming Virgin Coconut oil. Ken

I agree with that statement. In the article it says that environmental factors may coincide with genetic predispositions. I just don't really understand if this means more sALS cases are in fact fALS cases that just don't show up 100% of the time. The article states that 26% of sALS patients...