Recent content by Kelly5538

Hi Mike. He has always rejected the psychiatrist part. He goes to our three month neuro appointments but rejects everything they suggest and tells them so. He says that nothing will stop this anyhow........

Hi everyone. I'm not really sure what to do here. PALS has never been the picture perfect husband but it's getting so bad. Today I had things thrown at me, was told to F off numerous times, told to get the f out, told that he should have left me 20 years ago, had to clean up a pop that was...

Hubby seems to have issues peeing...... he uses a hand held urinal but he seems to have to hold it there for a long time before he pees (if he does at all). He says he has to go but then nothing - or a very long wait first. I asked him to tell his nurse about it but he says it's fine, that he...

I'm in Canada. The laws may be different here, I will have to check. Right now I am very lucky because my employer is letting me work mornings in the office and I work from my home office in the afternoon. I find I am making stupid mistakes though and I know it is because my mind is just all...

I know it doesn't need to be said, but this disease sucks ��

The reasons I think FTD is yes, personality changes. Actually, I believe that FTD symptoms showed up first. Last year he became very unempathetic (is that a word?), stopped any socializing, became very selfish and just downright mean - not physically but with words. I was actually considering...

I know that we do not know anything in regards to time frame, but then how will I know when to take (if I do) Caregivers leave? I believe here in Ontario we get 32 weeks, how do I know when to do that? Hubby started symptoms last year and was formally diagnosed in January this year. At that...

Ok well that explains my new found extra 15 lbs! I have never been an emotional eater until now. Nothing like half a box of chocolate chunk cookies at 3:00 AM :)

Ellis, I have often wondered if that's part of it too

My PALS was never the picture of happy, the entire time we have been together. Now he is just downright mean to me, often. Yesterday I got yelled at for working on insurance paperwork and he told me that I'm more concerned about money than his health (not death insurance, I'm talking about his...

Oh and yes, we are with Sunnybrook. They have been great so far

Hi Paul. I do actually have a question about CPP. If we take CPP will it affect his work policy disability insurance?

Thanks. Yes, our doctor's office is fantastic and they are setting us up with the ALS Association here in Ontario. I'm a bit of a control freak ;) so my thoughts are running a mile a minute about what we have to do to prepare and all that. I know I will calm down eventually

He definitely has spasticity and hyper reflexes. He did say the brain thing right after doing an EMG, so I guess that is how he knew that?

As much as we knew that the ALS second opinion diagnosis was coming, when the dr said it on Tuesday it took my breath away and I have had a hard time not crying ever since. I finally put a date in my user info here.... It broke my heart to do it. Original diagnosis was November last year -...