I am concerned about my husband. He now weight 142........he can't breathe...he always had asthma but this is different. His muscles are wasting away......his reg doctor and pulmonolgist keep doing tests, but meanwhile he is wasting away. He just cancelled his 6 minute walk because he can't do that. He cries a lot....he just had a broncoscopy and they took samples..........but it's a 2 week weight. He is on oxygen when needed. He is struggling. Just to get showered and dressed it exhausts him. They keep giving him new inhalers which are not working. HELP...I had him stick out his tongue after reading some of the message boards...His tongue is bright red and there is a lot of movement in it.....which he does not feel....
Help...........I am watching him waste away to nothing. I have to write out his checks for him, because his right arm was diagnosed with ulnar nerve damage..and his left hand shakes...........he can't do much of anything but watch tv without getting exhausted.........I've learned that it could take up to a year to get diagnosed with als...but I don't think we have that time looking at him........help
Mar 28, 1955
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