My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing.
We have been discussing living arrangements as her mobility and breathing decline.
Other pALS out there, what did you decide? Did you...
My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy.
Does her diminished pulmonary function indicate ALS progression is aggressive? She is...
Thanks again for your guidance and encouragement.
My mother (ALS dx 1.2.19 from Dr. Lucey in Fernandina, FL) has her “second opinion” evaluation at Mayo (Jacksonville) on January 30, 2019.
Do you have any other helpful information regarding this first appointment? We were advised it...
Thank you Kim T.
I’m learning it may not be possible to get into Mayo utilizing Medicare part B benefit. I’m trying to find more information.
I really appreciate your insite.
As of now initial appointment is February 26, 2019 at UF/Shands.