Recent content by KC2U2

A ALS diagnosis will get you automatic fast track approval for social security disability, that is the good news. the bad newsis that fast track means you will have to be out of work six full months before you receive any payments so consider this when deciding quitting date. also contact your...

no good news, dexpramapexole not effective

Hi, didn't know if i would see any faiiliar faces but good to see some old friends. Just got my Tobii and am getting used to typing with my eyes, everything is going well but it has been an eventful year

I havent been on in a long time. I just wanted to let everyone know that I am safe from Hurricane Isaac. I evacuated 2 weeks ago to the hospital ...although the doctors dont consider it an evacuation considering I had 3 infections to get rid of....hahahaha. I am safe from the hurricane on the...

He is in the rehab hospital after getting his trach, peg and suprapubic catheter

Ok, anyone have this going on? Kevin will suddenly get chills, chattering teeth for about 35-40 minutes then sweating for about 20 minutes. Then he has a bowel movement....WTH? Tonight he spiked a fever of 101.8 with these symptoms. Can't figure this out....

He is doing wonderfully. Shooting for home on teh 29th. He had a MRSA in the trach so that set us back, but the doc thinks we can still make that date. He is doing great and they put him in his wheelchair the other day for about 30 minutes for the first time. He is as crazy as ever and flirts...

Hi, I am Gina, Kevin's wife. On January 30 I took Kev to the hospital because he had been having dizzy spells during the day. By the time the ambulance got him to the ER, he was in respiratory failure. He agreed to be intubated and sedated to have a chest CT scan. It was negative. the next...

sorry to hear,, welcome to the forum

watch our story My Changed Life - Kevin and Gina Connell Part 2 on Vimeo

you need to keep the weight on because you use so many calories with any kind of movement. Everything is more difficult and you expend energy(caloroies) for even minor movements. Keep eating all the stuff you like and add protein where you can.....

i see Dr DeAlvare at thhe clinic in Lafayette, if you contact the ALS Association they may be able to refer you to someone up north 225-343-9880

check with the ALSA and social worker about state programs. I get 50 hours a week of home health care through a state program that has spots reserved for PALS, Gina can still work full time

i went with the Quantum Q6 Edge, full tilt and recline, goal post type control as the joystick proved tiring

I'll be doing this tomorrow