Recent content by kaylseyum

Hi all, Haven't posted for awhile and so much has changed. My (future) MIL has declined rapidly since Christmas Eve and is now at the Hospice Care Center. They think she likely only has days left. The hurt we are experiencing cannot be put into words and I have honestly been so emotionally...

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Hi Jackie, I am 25 and my future MIL ( i call her my MIL for convenience) just got diagnosed. I am a full time student and commuter, and, while she still lives with her husband, she may eventually live with us and stays with us often. My fiance works daily and because I am in the healthcare...

Done and done! Is there a way to view the comments that have been submitted by others?

Great suggestions, all! I think clicker training sounds like a great idea I'd love the info! I can't begin to express how helpful everyone has been! I went to an ALSA support group last month alone (before her official diagnosis) just to see what it was like (hoping for the best, preparing for...

Sorry these posts are so long! Writing it all out helps me sort out the issues and possible solutions so much better than spinning these thoughts in my head. You all are such a wealth of knowledge and support, thank you!

Thank you all so much for your input, everyone. I had a feeling that her living alone would not be a viable option. We are planning to eventually live with her once our lease is up but that isn't for 6 months and the rate things are going, we want her out of her current house YESTERDAY. Our home...

Hey all, this is actually my second post since my mother-in-law's (MIL) ALS diagnosis earlier this month. This diagnosis, as you all know, is devastating. On top of it all, her housing situation is not ideal and we are trying to figure out the best option for where to move her... She...

Hi Ryanw, how did you appointment go? Hoping that you not updating this post means they determined it isn't ALS! I am working on getting my mother-in-law referred to the ALS clinic at Virgina Mason so I wondering what you thought of it? Were they able to diagnose you? Did you meet with a Dr...

Whoops, meant to say I feel like YOU** have echoed..."

Notme, I feel like we have echoed EVERYTHING I have experienced. I was unable to take my MIL to her first PT appointment and come to find out, they had NO idea was ALS was and likely had her do many PT exercises that were detrimental to her! She had bulbar onset and her speech is almost...

Thank you all for your input! I truly appreciate it. I personally feel that there is a huge gap in providing care for the CALS, and although it saddens me that I am not the only one who feels this way, I am happy to know that I am not alone. Now, what to do about it!? From what I can tell...

Hi all, I am brand new to this forum. Happy this forum exists, not to happy to need it : / My mother in law (MIL from here on out) was just diagnosed with bulbar onset (probably familial) ALS about a week and a half ago although they have been suspecting it for awhile. My husband and I are her...