Recent content by kaumy2

  1. K

    How to get saliva out of mouth?

    My wife had a problem with a clear sticky mucus in her throat and mouth in the morning after awakening. We were given a prescription for cough medicine to dry it up which worked somewhat. I found that "Mucus Relief" which I got from Rite Aid really did the trick in alleviating the problem (the...
  2. K

    Improvement in symptoms

    The change is still there. I don't see any change in her arm or leg strength, either weakness or strength. I check her strength daily. The neck muscle strength was very obvious, and several persons saw it and commented. She continues to hold her head upright and turns it normally. Thanks for...
  3. K

    Improvement in symptoms

    Sorry...it's been changed.
  4. K

    Early Symptoms?

    My wife was also very athletic and did classes at the Y every other day...First symptom was foot drop...took a long time to get diagnosed as ALS
  5. K

    Improvement in symptoms

    I don't think there is any chance of overcoming this as it has been too devastating both physically and mentally...The AlS coordinator said she had not come across this before...another professional said that he hadn't had anyone show improvement in 2 yrs of working with ALS...The neurologist...
  6. K

    My wife was diagnosed with ALS in August 2013. She is on a bipap and has small degree of...

    My wife was diagnosed with ALS in August 2013. She is on a bipap and has small degree of strength in her legs and in her arms. She also has had a ng tube for at least the past 3 months. About 6-7 weeks ago she developed a severe head drop and we started using a neck brace. About 3 weeks ago...
  7. K

    Improvement in symptoms

    My wife was diagnosed with ALS in August 2013. She is on a bipap and has small degree of strength in her legs and in her arms, although not enough to be functional or useful. She also has had a ng tube for at least the past 3 months. She was experiencing a fairly rapid decline for about the...
  8. K

    L-Serine

    Just a comment about L-Serine....My wife took 30 grams a day for approximately 3-4 months. 15 grams twice daily. I was hoping that I would see some benefits but did not. I also did not observe any problems either. She just had her physical 3 weeks ago and her blood work up was fine. She has...
  9. K

    Stem Cell Treatment

    I wish you the best and will be anxious to hear about your progress....hopefully you can get on this site in China and keep us posted.
  10. K

    Amino Acid - L-Serine

    I would like to private message you....I'm relatively new to this forum and not quite sure how 1 to 1 communication is done. Can you give me some advice? Thanks, Kaumy2
  11. K

    Amino Acid - L-Serine

    Sorry, it's 7 grams twice a day. Some info came from the clinical trials that you cite and some from PeteJr that started 1-14-14 and posted here. I've been very conservative about it, not knowing it's potential negative effects. One of my concerns is the question in my mind that L-serine could...
  12. K

    I have a few other questions. I would greatly appreciate your reply. Thanks in advance. kaumy2

    I have a few other questions. I would greatly appreciate your reply. Thanks in advance. kaumy2
  13. K

    Okay...looks like it is between the 2 of us. My wife is the one with the als diagnosis. I've...

    Okay...looks like it is between the 2 of us. My wife is the one with the als diagnosis. I've communicated with the Tiantan Puhua Hospital in Beijing and sent them info today. I have been in contact with the spouse of one patient from Australia (who was a patient there) and she said that there...
  14. K

    km2149, I would like to have further communication with you regarding stemcell treatment in...

    km2149, I would like to have further communication with you regarding stemcell treatment in China. I have been researching it and have communicated with at least one person in Australia (spouse whose husband had 2 treatments, but has since passed away) who definitely said that they would do it...
  15. K

    Stem Cell Treatment

    Has anyone had any stem cell treatment for ALS from Beijing Tiantan Puhua Hospital or the Cells Center China in Beijing? I saw that they had a stem cell trial listed in Clinical Trials. gov so I wondered how legit they are. I would like to know more about it and how successful the treatments were.
Back
Top