Recent content by Katy Sunshine

(2)After taking it for two months, I noticed nothing. When I have to consider liver function each time I'd like a glass of wine or a beer, well, it just didn't seem worth it to me. I didn't think I wanted to add more time to all of this anyway, IF there was time to be added. Perhaps that...

(1) Hi Brian, Sorry it's taken so long for me to respond. Drs appts and all that. Thank you for all the info. I've been using relaxation techniques for about 30 years. It was great with the start of youtube and the videos available. I also think I've become pretty good at living in the...

There's not a lot left to my speech either. My Neuro , who is the best at this in my area, just referred me to a pulm. spec. and to a GI to have my PEG tube placed. Also wrote orders for a Psych. just waiting on them to call me for an appt. That is what I'm looking forward to most, finally to...

Absolutely Kim! Anything to help. :)

Hi Bob, Like the others, so sorry to welcome you here, but welcomed you are. I, too, was recently diagnosed with Bulbar Onset and am in Florida. Go figure. Anyway, you'll find great people and good answers here. Wish I could help on the Robinul. It dried everything out but the saliva, on me...

Hi Mocha, Just wanted to say "Thank You" for a very wise post that so many visiting people should read. Katy

Hi MedStudent, Yes, they ruled out the ACM some time ago. The posterior fossa decompression was successful. I had no dysphagia before or after the surgery in '97. I do, however, have an upcoming second opinion appointment soon. Thank you for your response and good wishes. I send you mine...

Sharon, To have a neurologist's receptionist do that is even more unacceptable! You'd think they would know and be extra sensitive. I, too, am sorry you had that to deal with. People just baffle me at times...

I know we have not officially met, but I just wanted to say how happy I am for you. That's wonderful that you were able to share those memories and build some new ones. You made my day and gave me hope. Thank you. :)

I wanted to say thank you for the honest posts here. They helped me more than you know. It reminds me to be more patient and more grateful to my partner who is caring for me. Sometimes we forget to say thank you and forget how much this is affecting *you*. Thank you for opening up this...

Well, I'm just disgusted with the whole doctor's appointment thing. What a complete and utter waste of my time, yesterday. You can certainly tell what sort of healthcare you have by the level of your doctor. I saw him for maybe 1 minute and I haven't seen him in 3 months. Thank goodness he's my...

Hi Brian, Thanks, I'll give them a go. We have both reached the same point, I think. All of the testing started for me last July. By December, ALS was the direction in which my neurologist was leaning. He had already mentioned twice that he was fairly certain it was an MND. By New Year's I...

Ack!! Oh-mi-gosh, I'm so sorry, Brian! I don't know where in the H3LL I got Tony from. Who knows where I pulled that out of. With that in mind... "Hey you", thank you for the good wishes and for the tip on the meditation videos. ;) Always looking for things that might help me relax. Good...

I would like to say to everyone (people in every aspect of life): Have patience with me. Have patience when I speak. Yes, it takes me a long time to say what I want to say. Please don't finish my sentences for me. That frustrates me. It makes me feel as if you are rushing me and you just...

Hi Tony, Sorry you find yourself in the position to even have to lurk here. I was diagnosed with Bulbar Onset a little over a month ago. The nine months of testing that led up to the diagnosis were the most frightening of my life, so I definitely understand. (1) For me, both sides were...