Recent content by Kathy K

  1. K

    Woke Up - Air Hunger

    maybe fruit nectar, or a smoothie with avocado to thicken it?
  2. K

    Woke Up - Air Hunger

    Pete, have you tried blending your food? You can control the thickness and it may lessen your chance of choking. sorry you're going through this. Kathy
  3. K

    Cough assist

    i use a phillips respironics t70. I can't initiate a breath so we use manual mode.
  4. K

    wheelchair hack?

    I have a permobil corpus f3 Wheelchair.. I can't drive it anymore but I can still change my position using toggles which my bent fingers can manage, but this is getting more difficult. an omni switch has been recommended but I'm not it will work for me because of the way I position my hand at...
  5. K

    hospice and trilogy

    I'm looking into hospice. I need a trilogy 24\7 ahnd would have to switch companies. Nervous about this. Has anyone had this experience \
  6. K

    Equipment Recomendations

    Pete, I have the same wheelchair and was bouncing around in the van. Lateral supports helped. There is seat belt for the chest which I have not used yet. A soft cervical collar helps, maybe it will help you. Kathy
  7. K

    Pt. Visits

    I had trouble getting used to the hoyer. Home pt was very helpful.
  8. K

    Washing hair

    I use an inflatable basin like Diane mentioned and it works very well. There is a very helpful youtube video which shows the process
  9. K

    What makes your fasciculations worse?

    Definitely stress.
  10. K

    PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

    Best of luck Chally. Kim that sounds wonderful
  11. K

    PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

    Still here. We got over 2 feet of snow on Tuesday, looks beautiful from the comfort of my house . Sorry your niece had to cancel, Kim. Snow and wind were so bad I couldn't see past my driveway. And a few more inches expected tomorrow. Thankfully we didn't lose power. And spring is around...
  12. K

    PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

    Here. My sisters were here over the weekend and did some organizing and prettying up of the house for me. Plus we had a lot of laughs. Kathy
  13. K

    alternating air mattress

    Jim and Laurie, I'm sending you virtual hugs : ) Have not had back pain the past few nights thanks to you. We slightly elevated the head of the bed which was much more comfortable, and my husband does quick ROM before he leaves for work. No more back pain! It's tough being in pain...
  14. K

    Feeding tube in different location.

    Chally, I just have a regular PEG so can't help you, but if you don't get any answers here, there is a facebook group called Adult G tube feeding which may be able to help you. Best of luck. Kathy
  15. K

    blended food by mouth

    I can eat soft food but it's getting more difficult so I'm turning more to puree ing . I'm having trouble with the consistency of certain foods. I tried pureeing instant oatmeal this morning but it was too gritty. I have a vitamix and had added cream and flaxseed oil. Any ideas? I have a...
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