Recent content by Karvorka

  1. Karvorka

    Survey..

    Hi Guys My cousin is looking for a few of you to take a quick survey for her high school certificate assignment on care givers of mnd patients.. If you are interested in doing one let me know and I'll forward the document for you to complete.. Thanks Dale..
  2. Karvorka

    ALS and iPads for communication?

    A tablet with windows 8 would be able to be adapted to do everything that you described plus run eye tracking, head mouse, any switch and probably any future technology developed later on if needed .. I also have no limb and very little head movement and I've discovered the best all encompassing...
  3. Karvorka

    ALS and iPads for communication?

    I just wrote an extensive reply but lost it.. Here's the summary, don't buy an ipad, buy a tablet that runs a full version of windows 8 not android. Its about $400 more but far more adaptive later on when he can no longer use his hands and you need to hook up a smart nav or eye tracker etc...
  4. Karvorka

    For anyone living in NZ with MND.

    good news for Kiwi pals.. About time really, if we Aussies have it on the subsidized list ($5.90 a month) so should you ..
  5. Karvorka

    eye controlled hardware ..

    thanks for your replies.. I'm going to trial the pc eye go and see what happens
  6. Karvorka

    eye controlled hardware ..

    What recommendations do people have for eye controlled hardware ? Pceye, eye gaze, neuro switch or something else ? I was waiting for the eye tribe to produce something solid but they're taking too long ..
  7. Karvorka

    Can't keep my legs still ..

    Nothing ..
  8. Karvorka

    Can't keep my legs still ..

    thanks but I can't talk though .. bummer
  9. Karvorka

    Can't keep my legs still ..

    Hi Everyone, my legs are pretty much toast but there's still some movement and I enjoy moving them while not sleeping, but while I am sleeping I get these sensations to move them like the muscles and tendons tense up and they get uncomfortable and want stretching after 15 or so minutes and I get...
  10. Karvorka

    Chest clearing techniques..

    Yeah thanks hopefully they'll join the discussion and leave some pearls of wisdom .. I've got chesty phlegm from time to time and can usually move it enough with cupping and rolling so I can swallow it.. YUK!.. But it sometimes takes time and therefore energy so if anyone has a better technique...
  11. Karvorka

    Chest clearing techniques..

    Yes I'm fully aware of cough assist but not everyone has access to them and they're very expensive if you have to hire or buy them .. I was more referring to cupping techniques, rolling or sitting positions, humidifiers and steaming etc..
  12. Karvorka

    Chest clearing techniques..

    I'd like everyones thoughts on the best chest clearing techniques they've discovered.. Be specific
  13. Karvorka

    Fasculations

    Tonic water not the cheap stuff ..
  14. Karvorka

    Nutrition, vitamins and herbs

    Save your money, which is what my neurologist said to me about 5 years ago but me being me didn't listen ;) Over $25 grand later I should've listened .. Vitamins and supplements do nothing I've tried about everything, spend the money on ABSOLUTELY gorging yourself on whatever floats your boat...
  15. Karvorka

    Bipap mask and lip biting

    I had the same leaking issues and I've had a quattro fx for 2 years; I found its all about the technique of putting it on, needs to be wiped out everyday and rinsed in hot water and vinegar weekly, loosen all the straps daily about half way, when you put the face piece on you MUST angle it so...
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