Recent content by karsey

  1. K

    My dad was recently diagnosed with ALS & I don't know how to act

    <quoted text removed> Hello, my Dad lost his battle with ALS, after living with disease for just shy of 4 years, in October of 2015. It has been a hard journey but there has been good to come out of it. My Dad battled ALS like a warrior and his mantra was to "live life to its fullest" with the...
  2. K

    CALS Roll Call Continued

    I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website...
  3. K

    Research Study

    Thank you, Kim!
  4. K

    Research Study

    I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website...
  5. K

    I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am...

    I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website...
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