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  • I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website: https://www.cdc.gov/als/ALSNews.html

    I have posted the link to the survey right below if you are interested in taking part in my research study. It takes about 2-5 minutes to complete.

    https://unc.az1.qualtrics.com/jfe/form/SV_elCPTlpgDOfKkT3

    May we never give up the Fight Against ALS!
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