Recent content by karla r

  1. karla r

    Musc

    Duke said it doesn't look like als at this time. I still have motor neuron signs. Since they are so far away, and my secondary insurance does not cover them, we decided I will stay with MUSC while a diagnosis is found. The doc said he could also transfer me to their neuro clinic, but MUSC is the...
  2. karla r

    Musc

    That's what it is for, Vince. Emg/nerve conduction and clinical evaluation.
  3. karla r

    Musc

    She called this morning. She is waiting on a return call from the association. She wrote out new orders for me for a powerchair of my own, and some other DME she said I needed, and mailed them out to me. Hopefully, the right codes are on those, so we can move forward there. So, yes, definitely...
  4. karla r

    Musc

    Went back on the 3rd. More tests. Doc doesn't know yet, bit did say to tell my long term care case manager she will do the paperwork for anything I need. That helps some. Also said she would speak to the loaner place about me keeping my loaner powerchair longer. They are saying I will need to...
  5. karla r

    PALS roll call Wednesdays ( or whenever)

    Here. Just been so busy trying to get a ton of things handled. Monday is back to dr. Ruzhansky (spelling?) Emg/nerve conduction, and follow up.
  6. karla r

    Appointment cancelled

    They are looking for a cause. These tests eliminated more causes. Not sure yet if that is good or bad.
  7. karla r

    Appointment cancelled

    They called today from dr Ruzhansky's office and said all the blood work was in and all of it was normal. So, next up is the appointment for October 3.
  8. karla r

    Unexpected weekend activity!

    To me, they are better than glucerna, and way better than ensure, which I also could not stand.
  9. karla r

    Unexpected weekend activity!

    Nikki, can you get premier protein drinks? The chocolate taste great.
  10. karla r

    Appointment cancelled

    Ok. Blood tests are in. I'd already had lupus, and some others. V b6 is in normal levels. CK within normal levels, copper in normal levels. v e is a bit high. Alpha is 18.8, high end norm s 18.0 Gamma is 6.7 . High end normal is 6.0. Another test has a long name. Ana with reflex to enable...
  11. karla r

    Appointment cancelled

    I don't. They drew the blood at the office before I left. Didn't say anything about where it would be tested. The portal says results will show up there when available, just don't know how long that takes.
  12. karla r

    Appointment cancelled

    I signed up for the patient portal. Does anyone who goes to musc , or sees dr Ruzhansky know about how long it usually takes for any of the information to show up there? So far, the only things on there are my current meds, the appointments for the 3rd of October, and a general "blood tests and...
  13. karla r

    Appointment cancelled

    Better update. Sorry, I was so exhausted yesterday I did a quick one. Dr Ruzhansky said it may not be ALS, but still in that area. The reason was she only saw hyperreflexia in 2 regions instead of 3. And she said 3 were required for an ALS diagnosis. I think I have that correct. My caretaker and...
  14. karla r

    Appointment cancelled

    Had the appointment this morning with Dr Ruzhansky. I liked her. She tested more reflexes than any other doctor has in the past. She said she needs more tests. Expected that. I go back Oct 3 for EMG, nerve conduction, and results of blood tests she had taken today. They did finally change my...
  15. karla r

    PALS roll call Wednesdays ( or whenever)

    Here, I think.
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