Recent content by karin

I also use a stamp. If it's electronic, somebody else signs my name

Are you sure your BiPap settings are still good?...they may need to be adjusted if your diaphragm got weaker lately. Have you done a sleepstudy with your BiPap? What is your O2 and CO when you get tired? Karin

Hi, it sounds like the catheter is not draining the bladder properly. - I assume you make sure the cath is not bent/kinked? - how far is it in the bladder? Any chance it's in too far? What's your procedure for inserting it? Some ?: - how much leakage during spasm...a cup, a Tbsp? - any leaks...

Al, which hospital did you go to?

A man visits his elderly father in the nursing home. Just before bedtime, the nurse enters and gives the dad his medication: a little yellow pill and a (familiar looking) blue pill. After saying goodnight he stops at the nursing station, and asks the nurse: "I would just like to know what my...

Your FVC is compared to what the FVC of an average person of your height, weight and sex would be = predicted FVC. That's why they need your height, weight and sex (and maybe age?). If your capacity is higher than the average, then it's more than 100%

Hi, if there's even the slightest possibility that it's MMN, you may want to ask about IVIG treatment. It helps for MMN, does nothing for ALS.

Welcome I'm sorry you had to join the club.

Hi Roni, my nurse comes every 3-4 weeks. When you say next week...will that be at DR / urologist office or at home? Do they supply everything or do you have to get your own supplies?

If you click this link, you'll see they're trying it for all kinds of incurable diseases http://clinicaltrials.gov/ct2/results?recr=Open&spons=%22GAAD+Medical+Research+Institute+Inc.%22&spons_ex=Y Karin

Hi Roni--I also posted this on living-with-ALS group: I started having urinary urgency --- which is really bad, when you're using a walker and don't hav enough hand controll to get pants down in time :-) My ALS Clinic also didn't want me to get one and insisted I see a urologist--probably...

Hi Al, I'll probably get there around 9:15....I wish they would start a bit later See you there

Hi, I will be on the afternoon panel. I've been going to for the last couple of years. It's always a good place to meet new people. Al...we met at the last one...you were sitting by the entrance...I was the woman at the front in the power wheelchair See you all there, Karin

Hi, I hate to say this, but these tubs really won't work for a PALS longterm. How are you going to transfer him into it? sliding-bad for his skin...lifting-bad for everybody's back Who is going to bend and reach in to wash legs/feet?...very bad for your back If/when his neck gets weak there's...

Hi, I would love to....but not for $ 900 Canadian! I can't afford that as a PALS. All events I've attended so far are either discounted or free for PALs....apparently not this one Program looks very interesting. Karin