Karen,
I am so sorry I missed this message. I am relieved to hear you have a slow progression. I am glad LNM dominance can be slow too. I am happy with Radicava, but I cannot say for sure if it is helping. But doing something feels good. Conceptually, sopping up free radicals in my brain seems wonderful. I wish they would do some wider drug trials to get a more definitive result.
I tried to take Riluzole but I get an allergic reaction - phlegm in my throat. So I stopped taking it. My wife has enough trouble sleeping without me coughing and clearing my throat!
I was in Medford many years ago, but not much travel lately. If you ever find yourself in Vancouver, BC I would extend the same offer. Maybe we could get Shiftkicker Fiona too!
Love to you and Wendy.
Ted