Recent content by karenhopes

Ok everyone before you tear me to pieces please read first and understand I'm just scared. I'm home in the states and went to see a neuron and asked for an EMG like you all suggested. MHe told me he could not and would not see me as he is not a specialist in ALS. I begged gim to at least...

Nightwolf, thank you for you very kind explaination of what I am experience and sensitive to my personal feelings. Patrica 1 a little mean, I hear what everyone is saying and all the comments gave me some kind of understanding and comfort; I am not trying to have ALS just scared honey that is...

Thank all of you for your support and help. I have never met anyone like y'all before, so strong and determined. ALS is a terrible diease worst I believe then cancer cause with cancer there are tools that have been proven to work. I'm a hot mess tempering and shaking all the time maybe I'm...

Thanks you all I will try, to not bother you.

Thank you oscar1 for the encouragement, I am scared to death of the EMG test.

sadiemae your husband onset was 2007, and diagnosed 2009 it took two years so could not the same thing be happening to me?

Brookseas may God give you strength and reward for helping us all from your own experience .

Sadiemae, so sorry about your loss thanks for staying around to help a fool like me. Karen

Thank you Pie for responding and no words can express my sincere hope that a miracle comes to all with ALS. Sometimes my fear is so great as to how I would carry on but your spirit is remarkable and I hope to be as you are. Karen

Thanks Sadie

Please for give the bad grammar my iPad does some weird things with the auto correct.

I know y'all it might seem stupid or ignorant my comments and I know a lot of you have been diagnosed with ALS and feel like I am wasting your time but my fear is real, my dent in the top of my hand and the sides of both my feet plain to see. Remember when you all first knew something was wrong...

Hello Everyone it is me again. I know you all said that two years is too long to be having twitching but some of the newly diagnosed people did not find out for 2 or 3 years and had symptoms. I am scared really my whole body twitches and some times my finger will do this shaking thing for...

Hello Everyone, I think I have ALS and no one believes me not even the neurologist. My twitching started two years ago and now I think I have muscle wasting in my hands and feet.. There is a big dent in the side of my foot where the arch is and one on the top of my hand. The doctor says I...