karenaustralia

im glad you had a good time all the good times we have now seem to be more precious .you know what i mean well take care karen talk later

Hi Karen, sorry I have not had the chance to message you either. I was JUST thinking about you!! It has just been a very busy week, and a very emotional week because one of our beloved forum members grandbaby died. It has been heart wrenching. Anyway, I was going to start a thread on this, but ask your doctor for Nuvigil. It has helped my dad with his fatigue A LOT!! Once I get around to starting a thread, check it out. I am just so fatigued myself too. I have not been posting anything other than answering messages for now. You hang in there my Aussie friend!! Hugs, Kari

hey karen no need to apologize most of us have famils work and alot going on glad you had a good time i hope all goes well with your test and stay positive talk later

Hi Karen, I have been on the road in the RV. Traveling clear across the US and now on our way back home. Saw my oldest gr. Daughter graduate from high school. So glad I at least saw one of my 14 graduate... Went to Dallas to go to lunch with friends.. I haves loved every min of it except for the heat... Colorado has wonderful mild summers.... Good to hear from u.. Hugs, Linda

praying your doing ok and all is well hang in there even if its one day at a time thats what i try very hard to do less stress well take care

karen good to hear you had a good day soaking up the sun is awlsome i love it outside when its nice may god bless uis with many more good days

im so glad for you to still be mobile enjoy everyday as if were are last .we never know gods plan so stay strong and dont drink too much lol take care

hi karen hope all is well and your hanging in there tough .one day at a time is my motto it seems to work well god bless

Part 2

Re the Tassie thing. I have been trying to educate those non Aussie posters a bit and the devil is just an extension from a previous folly where i was from Tasmania. I have also been a bush ranger and a Aussie on the "LOST" folly. It is all a lot of fun. If you have a spare afternoon do a search on folly and read to your hearts content.
The only thing about the avatars is that when you change it all your previous posts change too. this spoils a bit the story line of the follies a bit as i change mine a bit, have been a spy, bushranger etc.

I hope this helps you, please sing out if you get stuck.

Peter

Hi Karen. There is some help under the FAQ button on the blue line. Just go into the profile section. I had a quick look and it mentions that you cannot have one until 10 posts so that might be the issue. I don't remember when I did my first one.
Jpeg files are just a format that you can save, say photos as. The good thing about it is that it greatly reduces the size of the photo from say Meg down to KB (sounds a bit high tec but i think the limit here is app KB) to check a photo size all i do is hover the mouse over the photo and the info appears on the screen, ie size and the format.


Part 2 to follow

hi karen good to hear from you .give it awhile and you will start getting more used to this forum im still learning.you will find many here that truely care .im glad your hear and we all can face this journey together i hope your day is a good one and also to be prepared is good. take care karen tal;k to ya later jeffp

Hi Karen
I posted a bit about me in your thread a couple of days ago re my progress etc. but some more info is i am 53 years old, have a partner/ carer. No kids.
Re profile pic. go to the User CP tab on the b;ue line. In there there is a tab saying somthing like Avitar. In there you can upload a photo of you for your aviter on your posts. (mine currently is the tassie devil for the folloy thread i am posting in) you can also have a different profile pic when people veiw your profile. That is also somewhere in the same section. (there are limintations on size of the pic. so i normally convert them to jpeg to reduce the size. that might be why you are having issues)

Sing out if you still have issues.
cheers
Peter

Hi Karen, I love that you started posting hun!! What you have to say is great!!! Well, it is late here, it is still Wednesday night so I am off to bed soon. Oh ya, when you look at a thread, be sure to look at he top left hand side and it will tell you the dates the posts were made. I sometimes still get caught, (well we all do) responding to a post that is years old!! haha.............Hugs, Kari

hi karen i would love to get to know you and help you in anyway i can .and feel your able to do the same for me .to have this site has been a blessing to me i love and care for all that suffer even those suffering with something other than als .but for me theres alot of knowledgable people here that have been and gone through the stage of this als im in and have helped me make some decisions and im so grateful for that.i see your in a wheel chair but still able to eat well the eating is great but the other part sucks.you know what i mean .well i have bulbar als they believe it started in 2007 with the symptoms i told them i had but offically i was dx 8/09 .i now have a peg tube that im adjusting to can still eat soft food but only for dinner because it will fatique my muscles in my throat .half the time i sound like a drunk due to this but ive excepted my lot and taking it one day at a time i hope to hear back from ya and hope your day was full of peace and happiness jeffp

Hi Karen, How are you doing today? Oh I envy your weather!! It's always nice in Perth it seems. My dad is the one who has ALS. It has been very hard on all of us. He was dx last Sept. I lost my husband who was only 42, suddenly 2 years ago, so my road has been a rough one as well. I have a daughter who is 20, lives with me while going to college. I myself have chronic pain issue, fibromyalgia...well the list is long, but none of it is ALS. I can relate to the fatigue, and loss of having a regular life style. So your mom comes and takes care of you during the day? It is such a great thing to have family there for you hun. Let me know if you have anymore questions, or just want to talk.
Hugs, Kari