Recent content by Jwh1

I guess the journey has ended for a diagnosis. Unfortunately I will be sticking around this forum, as I was diagnosed with ALS this afternoon. I will offer more detail at a later date as we have a lot going on at the moment. I would like to thank all of you for your concern and support, I look...

Thank you all for your continued support, I will let you all know as soon as I get an answer. Jeff

Well tomorrow is the day I finally meet with the ALS clinic for I hope a final diagnosis. It. Has been 26 months since the onset of the first symptoms, and am ready for a final determination. I am so nervous for my wife as I don't no if she is ready for this, she has been kind of in denial about...

I understand your frustration, I am a veteran in the process of being diagnosed. I am dealing with the va in south Texas, where they do not have very good facilities, I currently have to drive 2 1/2 hours to see any real doctors. I do not know what the facilities are like in the Dallas area. As...

I am so sorry to here about your fathers situation. If your father is a veteran you need to contact a veterans group. Contact the als association, they will be able to help point you in the right direction. All veterans who served on active duty are automatically considered service connected...

I was not aware that they could determine als from an MRI, unless the MRI showed a problem that could explain the persons concerns. ( I could be wrong ). Did they find some problem with the MRI at all.:-?

I have not got the results yet, unfortunately with the va you have to wait until the info marrys up with your records and then request a copy. ( usually the doctor performing the test will tell you, but this was a tech and they never tell you anything) but as soon as I get a copy I will post it...

Hello, and thank you for your time and comments. I just heard from the als clinic in San Antonio. I got my appointment, on aug. 26. Hopefully I can put this all behind me after that. But after doing some research on the Internet, I am really starting to think that this may be ALS. I am now...

Check with your state social service offices, each state has their own programs for people in need especially children in need of health benefits. That said, I don't believe working out will cause als, you know as we get older we can't do as much as we used to today as we did yesterday, I don't...

Just had pulmonary function test so they have a base line. There sending me to the ALS center in San Antonio for final diagnosis and treatment, still waiting for appointment. Becoming very anxious and overwhelmed.

Barbie, he sending me to als association center of excellence in San Antonio, to a dr. Carlayne Jackson i am not sure if thats a all in one center or not. No confirmed appt. yet, still waiting on va voucher, just want to get this over with. And I would like to think everybody for there input...

If rilutek is the only Rx that has potential to help, why would others choose not to take out? (Are there severe side affects or something I'm not getting from the prescription literature). Just wondering.

Just received rilutek in the mail from va, prescribed by neuro. Do they this as a precaution? Had pulmonary function test today, still waiting to see speech therapist and als specialist.

Hello and thank you for your time in advance. This all started 2 years ago, pain, weakness and atrophy in upper left arm. Went to va doctor, he ordered cervical MRI and emg. MRI showed a problem at c5 C6 in the spine emg showed nerve damage.This was from a very old injury that never gave me any...