Thank you for your responses. It simply blows my mind that there is no help for us! Yes, stay positive, exercise and stretch daily until you cannot any longer and write everything down so your children will know you. That's what my Neurologist instructed me to do back in 1995. I'm grateful for...
Hi,
I'm new to this board. I'm 43 years old and have had PLS since I was about 8. I refer to PLS as my life sentence as its been a good 35 years since I have had a normal gait, balance, etc . I'm married to a very loving and helpful husband and we have 2 children together. He, nor our kids...