Recent content by JustTrying

I'm so sorry to hear this. Helen reached out to me and she was very kind.

I understand completely. I've progressed even more and the whole thing is just plain terrifying. I don't see my neuro until January and by then I really think my weakness will be impossible to ignore. I'm slurring more regularly, so I even sound like a different person. It's just....hard.

Hi there. I am so sorry about the diagnosis. You seem very caring about your fiancé's health. I have a question, if you don't mind. I am in the diagnosis process with some bulbar symptoms. I was wondering where they EMG'd your fiancé in order to dx ALS? My EMG was 'normal', however it was...

@H Ugh. That is my fear. That it wasn't done 'well enough.' I did ask a couple times why they don't do bulbar areas since I'm having symptom there, but because my neuro didn't specify that area, they didn't test it. I'm trying not to over think it right now. It made me feel better that the...

I joked that every EMG should come with a free cocktail. The Dr agreed!

I had my second EMG today but won't know results until tomorrow. I had a fellow perform it with a physician attending. My neuro gets the results and I should find out tomorrow. This one hurt so much more maybe because I knew what to expect? They poked me in my left leg, right leg, left hand and...

I'm sorry for your diagnosis. Congrats on the new puppy. Pets bring a lot of joy :)

I'm so sorry. It hurts me so much to see young moms diagnosed with this. Your faith will carry you through.

I wish you the best with your tests!

I am so sorry for your loss, Steve. You so thoughtfully messaged me recently and I really admired your strength. My prayers are with you to find peace. So very sorry :(

Goodness. I am sorry you have to deal with that. :(

Mine has been bumped up to Wednesday. That means almost exactly 3 months in between. And I agree, it does seem quite archaic. I read an article recently where they are trying to perfect ultrasound techniques to help diagnosed ALS, by detecting fasciculations. P.s. thank goodness for auto...

Yes, ma'am. You said it. I understand the anxiety of the diagnostic process, but there's anxiety and then there is full-on hysteria. So you were spot on w your comments!

Thank you for saying exactly what was on my mind (re: over-reacting when people are facing far worse)

I am not diagnosed. I am going through more testing and was in wait and see mode, but my symptoms are unfortunately progressing. I hope you can find a solution to dealing w/ the anxiety of all of this. GL