Recent content by justolemom

thank you - I will see if my husband can come up with something like that, extending the surface for my feet should help. I did like the ankle straps suggested and thought they would definatley keep my legs correct and on paddle but the paddles don't have holes and I cant imagine how you...

Thank you- but i also have the thigh support, but my feet still slip off to the sides.

I am having a difficult time keeping my feet on my Permobile footrest. my feet get cold and swell a bit during the day so i use the leg lift and recline to help with that, something they recommended to do every hour for 3 minutes. My problem comes when i go back to regular sitting position. my...

Wow, these are very beautiful. You have a wonderful talent. Thank you for sharing them for us all to see!

Has anyone been a part of the this trail? 1 or 2? AMX0035 in Patients With Amyotrophic Lateral Sclerosis (ALS). I cant seem to find any results posted anywhere. Thank you

Can you share the program? Or direct me to a link? thanks

hello, happy to be here today and get some help to bake a birthday cake for my oldest who turns 24 today! Joanne

you do this in the sling?

My husband and I used the Hoyer lift for the first time (alone) this weekend to get on the toilet and then into a shower chair. It didn't go as planned and we had some tears and a few foul words....but we got it done. My husband put me straight to bed with a Xanax for a long nap. we are...

scheduled to see the urologist in april - she mentioned botox shot to the bladder?? will discuss the catheter

So, neurologist did not feel that this was an issue and did not prescribe anything for me during visit. They suggested I call primary - did that in the car on the way back home. The PA was able to see me and very reluctantly prescribed oxybutynin and we gave us script to followup with...

I have clinic appointment in Stony Brook tomorrow and will ask about this med and look into getting a urinal(had no idea there was one for woman, wish I knew about the back in college?) Thank you

I am just wondering if anyone else suffers from this. At my last clinic visit i did bring up to the nurse that i often don't make it to the bathroom in time during the day. It seems i get the sensation that I need to go and then thats it I go. She didn't think it was an ALS thing, other than...

LOL, perfect card!:)

thank you. I did a search on toes but did see this. I iwll check it out. I have an AFO for my other foot, but I actually like walking barefoot with my walker. The shoes are so very tight and with the AFO my legs seem to get tired easier. I dont walk very much - to the bathroom, or my...