Recent content by JustinFrench

I went ahead and got the MRI and all was clean. I've made it to the UK safe and sound so I'll be going into a GP next month and seeing where it takes me. I managed to get into a neurologist one last time before I left the states and for the most part they don't know what to call it and wanted...

Just wanted to report I got one last neuro visit in before I leave for the Old World. No time for an EMG and NCS but as I figured, my perceived weakness is different from clinical weakness. (for the record, I do have clinical weakness in my legs, just not my upper body). Until the tremors or...

Thank you Ottawan, I am so sorry for your diagnosis and am saddened with your news. But FINALLY someone knows what I am going through. How bad had your symptoms gotten before you got a definitive diagnosis? My fascics had spread to both legs, I had severe atrophy in one (54 vs 50)...

Thanks, it's actually my 2nd neuro appt. Boise just has exactly 1 EMG specialist in the entire area, so the waiting line is awful. It might actually be better in the UK. I appreciate the comments and will continue looking for answers, as I'm sure we all are.

I also want to quickly reply and apologize for how long I wrote that. I did not intend to write a novel and I am sorry if I have broken any rules or wasted your time.

Hey all, I've been reading this forums for months trying to find a situation similar to mine and have been unsuccessful, so hopefully I can glean some info out of this or at the very least, allow the next person in my shoes to have something to read about. More than anything though, i imagine...