Recent content by justb

doing better now I am so sorry for getting so angry here. I keep thinking if people could truly see my heart...the spiritual heart, they'd know why I am the way I am. I can't even watch a silly Hallmark commercial without getting teary. My heart bursts with emotions at every little thing...

My mom took Rilatek for one month and for a while she was worried it was giving her headaches. The real problem though was that her diaphragm was already so weakened by ALS that she was retaining too much C02 just like Al said. If you are not using a Bi-Pap machine PLEASE demand one from your...

Of course I expected people to go on living. I ONLY mentioned that to try to make a point that it has been difficult for me to go on living when my life had become all about mom. That's all. Yes I know my mother is not suffering anymore and whether or not I "let her rest in peace" has never...

and this is stupid too something else I have been too scared and beating myself up to tell anyone is that my left eye and just above my mouth has been twitching a lot lately and I find myself thinking oh my god...I have it. I feel so damn selfish for even thinking such a thing just because of...

It has been 3 weeks today since my mom died. Everyone around us has gone on living, just as they should. I don't hold it against them either. On the other hand my life came to a screeching halt when my mom died. Taking care of her had become my life and I am so lost and alone and so very...

It's only been a little over a week since my mom went home to heaven. I know that's where she is and I know she's in a much better place. I also know that's where she wanted to be and she was ready. I honestly thought I was ready to let her go home. But I am falling apart. I can't...

Yesterday morning my momma went home to heaven some time around 4am. She was in her recliner and my dad got up just past 4 to get ready for work and thought she was sleeping so soundly, finally, so he was packing his lunch for the day and trying to be very quiet. After he got ready he went to...

Thank you Thank you all for your replies. Mom continues to have new challenges daily. From everything I've read this disease is "supposed" to progress slowly and yet my mom seems to have something new, or worsened, every day. I'm beyond exhausted and yet I instinctively tell everyone I'm...

I wish someone could tell me what's happening. My mom was diagnosed the first week of July but started having noticeable symptoms mid January 07. She suspects she had more mild symptoms (muscle weakness, fatique, etc) a couple years ago. In January she fell and couldn't get up without help...

Hello everyone. I am an adult daughter and caregiver to my recently diagnosed mom. She is 58 years old and started having problems around the middle of January 07. She started having frequent falls and could not get up by herself and just generally felt weak. Six months later a muscle biopsy...