Recent content by juliesmile

  1. J

    Help. My husband was diagnosed with ALS today.

    Quinny, My husbands story is almost identical. Yes, he was very fit and active, he was a farmer, surfer etc. Everything he did and identified was wrapped up in his physical abilities. He kept working because it kept him sane, but like you, I could see the life being sucked out of him. My...
  2. J

    Help. My husband was diagnosed with ALS today.

    I just want you to know there isn't a feeling you are having we haven't all felt. I lost my husband to ALS in Aug. I checked out of this site for a long time. It was just too painful! But I feel like I need to find a way to give to those still suffering. And all I can offer is my ear. I...
  3. J

    Chrysler Mini Van for sale

    I have a "2000" Chrysler Mini Van with Manuel ramp and tie downs. No electric gadgets to worry about breaking. Tinted windows, automatic transmission, 86000 miles, new struts and shocks. Reliable and in very good condition. Used only once to transport my husband. Any questions or requests for...
  4. J

    Is Strength Training a good idea?

    Thanks for the update Thank you Earthmama, for your update. I read your thread when first coming to this forum just about a year ago. I printed it out for my husband because he had the same questions. We just couldn't decide if he should be exercising or use what energy he had just to get...
  5. J

    Many Questions

    Unprepared for DX My husband was diagnosed following the EMG. We didn't think it would happen so fast. I figured the Dr. would say he needed to do more tests, or see how things developed, so we were totally unprepared for a Dx that very day. It was quite a shocker. Please be there with him...
  6. J

    Is this a symptom

    My husband has ALS, he was diagnosed in March. His was leg onset. His left lower leg is pretty much gone. But I have noticed lately that his right calf muscle seems to be increasing in size. Is this a symptom, or just an illusion?
  7. J

    Leave a Legacy - A Video for Your Family!

    I want to record him sleeping. I want to record him sleeping. He's noisy. I would love for him to record himself reading a book he loves, or read poems that remind him of me. But in the end it would be so incredibly painful to listen. I get choked up just thinking about it.
  8. J

    Frontline Video

    Tuesday's with Morrie I haven't read it yet, but a friend told me it is about a man who goes to visit his friend with ALS every tuesday and it's just about their conversation. She said it is very compassionate. I would be happy to loan you my video if youwould like. Just private message me...
  9. J

    Frontline Video

    I forgot to mention the title: "So Much So Fast".
  10. J

    Frontline Video

    I haven't seen anyone mention a Frontline Video that was made about ALS. It's about a young man with ALS and his brother and their drive to find a cure. It's very good.
  11. J

    Have recently been diagnoised with ALS

    Know how you feel My husband was diagnosed in March. I know how you feel. It's devastating. There are so many emotions to work through. Do you have support? Loved one, family or friends? We were sort of just thrown out there with out any real professional help. We could have really used a...
  12. J

    formaldehyde exposure and als

    Very interesting stuff My husband who was diagnosed with PMA in March isn't exposed to formaldahyde, but is slight built and muscular. He doesn't exercise excessively he is just naturally muscular and works hard all day with physical work, he's a farmer and it requires lots of walking through...
  13. J

    finger jumping, Symptom/

    Thanks guys, I sort of figured it must be related, but needed to hear it from someone else.
  14. J

    finger jumping, Symptom/

    My husband was diagnosed with PMA in March, his began in his left leg and is showing weakness in right leg, but now his finger has begun to sort of jump. Not really a twitch like we see throughout his body, it just sort of moves without being told to,plus it sort of trembles, or shakes. Not...
  15. J

    Question for PALS

    My husband was diagnosed with PMA in March. It started in left leg, has some weakness in right leg, and now his left finger sort of twitches? Not like the twitching he gets body wide, it just sort of jumps up all by itself. It also sort of trembles, very slightly, but definitely trembles...
Back
Top