Judith

I was dx with PLS (totally by accident) in 9/2009 after being dx with Limb-Girdle Muscular Dystrophy in 1/2005. I thought I could look it up on the internet to get more info. but all I can find are FACTS and how it differs from ALS! Guess I'll have to ask my dr. for more info.--xo V

Sorry I hijacked your post when I first started . . . this thing was kinda complicated at first. You have PLS?

Judy, The Baclofen doesn't seem to be doing much at this point but Peter has encouraged me to give it more time. I take 1 magnesium and 1 potassium supplement but they haven't done anything for the cramps. I suppose time will tell! Thanks for asking!

ji judih i hope all is well for you and your family today .if it werent for my faith in god and believe in my heart the strength i get from him i dont know how i would be handling this als. im still staying positive somedays are more testy but that is where god steps in .we can do all things through christ who strengthen me , that passage does mean some things it says all things .take cae jeffp

Hi Jeff,
So glad to hear you're doing good and improving. I thank the Lord with you. The Lord gives us the strength to press on!!
Judy

hi judith you can talk about the lord are god ,i beleive fully in christ and if not for him i beleive are lives would be much worse .i went to my norologist appointment and she was totally surprizes on how well ive become sence being diagnosed in aug 09
my reflexes improved drastically blood pressure was exellent pulse rate was excellent .i thank god for that and also the meds my nurologist has me on and the the help i get from this forum and friends like you dont meran to preach lol i still have a sence of humer your friend in christ jeffp

hi judith my als started in my left arm first now it has effected my speech but im like you grateful to be alive and still capable of doing limited things. i to am a christian and believe deeply in the lord jesus christ .so i know in my heart im not fighting this illness alone .i see you were dx 06 how are you doing physicaly. every night before i lay down i thank the lord for giving me today and if i wake in the morning im right there thanking him again .write me back if you ever want to talk god bless you jeffp

Judith, I started taking a potassium supplement and restarted the magnesium, upping it from the 250mg I was taking to 500mg. It seems to be helping. I appreciate the prayers!

hi judith sorry to hear about your als i was dx aug09 with the same illness it really sucks but i try my hardest to be positive and have faith in a higher being and believe in my mind as well as my heart i will defeat and win this battle were in it together never give up hope your friend jeffp

Thanks for being there when I needed you. Happy New Year, and God Bless.
AL Marble

I'm glad to hear PLS has been a part of drawing you closer to the Lord but sorry to hear the damage it has done to your body. I'm not doing too bad. I notice my arms and legs getting fatigued sooner and lately, my left ankle has been touchy. Walking down steps draws more caution these days, too. Thanks for asking!

Hello Judith! We have PLS in common! It's not much fun. My wife's name is Judith but everyone calls her Judi.