JTorm

I'm doing well. I just play games and read a lot. How are you?

Hi JTorm, im only 33 years old, do u mind if I ask what your symptoms are, do you have atrophy or just weakness? what tests have u had? Hope to hear from u. Danny

Glad to hear you are going for your masters! what an accomplishment! Sounds like you are not going to get any solid answers for a while. Guess you just have to keep living life and do what feels right for you (which sounds like you already are) good luck!

Hey how have you been? Just wondering if you have had any progress with a diagnosis? Took my mom a few years to get a proper one because she presented a little differently (she was a RN and always suspected it) so maybe, if you would like, she can offer you some advice or give you some helpful questions or suggestions for the DR? since shes been through it already. I am thinking of you and really hope that you are enjoying the summer. Again, if time allows please take time to do things you enjoy with good company! It seems silly but that's really important and YOU DESERVE IT! Thinking of you and sending positive thoughts your way

My initial ALS symptoms started in my tongue (also known as Bulbar onset). They started beginning 2011(January, to be exact). And they started with tongue weakness, later tongue fasciculations showed up, and finally tongue atrophy (yeah, my tongue shrunk half its size).

My ALS diagnosis was done in Dec. 2011 (exactly 11 months after the first symptoms began.

Every ALS patient is different and, in others, ALS may start in the hands or in the feet.

It's a disease more complicated than you might think.

I'm doing pretty well and regaining some strength since being on the DP

Hello,I have been checked for Lyme. I do not have it. I have been checked for two years for many things. All have come back normal.
Time will tell. Hang in there!

My family and I will be sending positive thoughts. It is very difficult! My mom's diagnosis took a while to figure out (can't say i know how you feel) but i think i have an idea. Try to take time for yourself if-you can-and do things that make you happy with people you love. We should really all do that anyway, diagnosis or not.

Can be a stressful and scary time. try your best to enjoy the now and not stress whats ahead/unknown.

Hey Juan. I know you're scared but wait to talk to your Neuro before freaking out. It most likely is something fixable. Do you know when you will be talking to her? I'll be sending good thoughts and prayers your way. Hugs to you!

I hope the best for you Sweets!

Hi Juan! What's your story?

Life is hard, really hard, but at the end we have to make it enjoyable...