Recent content by Jshemnitz

I honestly broke down in tears out of joy for almost 5 min in the exam room with my doctor. I still don't know what is causing the issues I am having but I know it's not ALS

Hi All, I have posted before https://www.alsforums.com/community/threads/had-mgh-als-clinic-visit-on-1-10-doc-found-umn-and-lmn-issues.45707/#post-476726 Long Story Short, My Cervical MRI that I had done a month ago didn't show any causes of my symptoms (just some minor disc issues). I went...

Nicki -- Next steps were the Cervical MRI which is going to be next Friday AM. She wants me back in the clinic in 2 to 3 months to see if things have progressed or not. Best Friends - I guess I am confused how 4/5 strenth is a normal finding.. I thought 5/5 is a normal finding. I don't want...

Hi Nikki, I saw Suma Babu - Suma Babu, MBBS, MPH - Department of Neurology. I had previously seen Dr. Paloma Gonzalez-Perez over the course of 2019 in their general NM practice. She seems very nice and easy to talk to, but she is horrible about responding back to messages. I emailed her on...

Here was my last post from December 2019 -- Pulmonary Function Testing done today -- closer to ALS diagnosis? Summary of 2 past EMGs 3/26/2019 (Tufts / Neuromuscular doc #1) – 5 muscles tested in right arm and leg tested (Deltoid, Ant Tibialis, Vastus Lat, Gastro Medial Head, 1st dorsal...

Did you have your MIP or MEP finally tested? My fvc was normal but my mip and mep were low as was 2 volume tests including rv which points to als.

Unfortunately, my doctors have stopped looking for weight/muscle loss causes...it's basically come back and check in with us every 2 to 3 mo for my primary docs and every 6 to 12 for specialists. ..that's across 3 different hospitals that I have seen docs at...which includes 2ns opinions (not...

I forgot to say that every test I have had done over the past year or 2 has basically been pretty normal (they spent forever doing cancer testin) and all those were always normal. I went to my docs with what's wrong with me and my symptoms have kept changing over the past year. Muscle wasting...

Clearwater and best friends I am definitely keeping the psych appt and am actually looking forward to it to get some help. Karen I am going to call my primary care doc on monday who ordered the test. I had already set up an appt with pulmonology before I even did the test but I can't get in...

So I started reading up on what these numbers mean and I am really confused and will obviously talk to my doctors about 1. Spirometry numbers look fine which I know is the first place you'd look with ALS 2. MEP is low which could indicate neuromuscular disease from ALS or from the weakening...

Hi All, I posted before and promised I wouldn't post anything until I had important testing updates. previous post from August: https://www.alsforums.com/community/threads/getting-a-2nd-emg-next-week-my-neuromuscular-doc-is-worried.44858/#post-468899 I asked my primary care doctor for a...

I forgot to ask 1 thing (that I didn't bring up to my neuromuscular doc on Friday). I have been noticing I have been coughing (not quite choking) on small food particles after I eat (it turned into a 30 min coughing fit with foot in my throat today). If I had bulbar issues, would that have been...

Thanks Karen