Recent content by Jselliott07

  1. J

    Recommendations

    Thank you for your feedback! I appreciate it. The fasciculations are all over but the areas of concern I’ve had are mostly the same, just worsened, and then some new progression added. No total failure yet of extremities, you are correct. Not counting in the shortness of breath and swallowing...
  2. J

    Recommendations

    Thank you. Last I tried to get into Mayo I was denied. I haven’t tried since having more symptoms. My emg didn’t do any bulbar muscles, he did leg and arm, didn’t do hand either. I just hate having the emg done but am I right I’m guessing a new neurologist will want to do their own? I’m just...
  3. J

    Recommendations

    Hi. I don’t know how to post on a thread after it’s been closed, I don’t want to open a new one but not sure how to do it. If someone knows how to merge these or wants to tell me I can try and do it. Sadly I am still in the same boat as before, just progressed. My right leg is continuing to...
  4. J

    Shaking

    Just an update. Still no new news on the Mayo front, still awaiting an approval for appointment. My speech has continued to feel diffucult, mainly my tongue, and I have issues with swallowing at most every meal, so my neuro is sending me to his speech doc for an evaluation and swallow study...
  5. J

    Shaking

    Yes I very much remember the audience of this page, my intentions would never be to be cruel. That’s also why I’ve waited so long to update as I’ve never wanted to take up excess time. Do I think I have some anxiety related to my current health, yes. Do I think it’s causing all my symptoms, no...
  6. J

    Shaking

    Does anyone else have any experience like what I am having?
  7. J

    Shaking

    And thank you for attaching my previous thread. I wasn’t sure how to do that.
  8. J

    Shaking

    My last neuro appointment he took some videos of it and said he’d send to the doc, it’s just so infuriating because to get in to the other doc I’m waiting another 5 months. Meanwhile my life is being turned upside down.
  9. J

    Shaking

    Latest thread I’m still here. I wish I was totally back to pre ALS fears but I’m not. A little update on what’s going on, I still have the twitching/rolling of muscles. I have what I feel like is slurring but my husband said he’s not sure. I have difficulty swallowing, not every single time I...
  10. J

    Foot drop

    I agree, I think I need a new pcp to help me get to the bottom of this. He did notate weakness on the leg I wrote in about, so that alarms me but hopefully I can see my neuro soon and get his thoughts. I also have extreme muscle mass loss on the inside of my arms, underneath the biceps. I think...
  11. J

    Foot drop

    Thank you for your responses. I was nervous to post again. I saw my primary today that noted weakness in right leg, is ordering an mri to check into it and sending a letter to the neuro to request a repeat emg. Grounded- thank you. Heels are fine, the issue seems to be in pointing my foot...
  12. J

    Foot drop

    Yes I can
  13. J

    Foot drop

    I should also add I’ve felt a little off standing on my feet for a little while but have just pushed it off. Just a little mis balanced, slightly unstable, but have never fallen or not been able to catch myself with my own strength. My neuro nurse said to go into the ER or my primary in the...
  14. J

    Foot drop

    I wish I had a better update but sadly I’m back. I am still having all the fasciculations and twitching, but instead of all over it’s now seemed to settled in my right leg, mostly the back of my knee. My newest probably scariest symptom now is what seems to be either the beginning of foot drop...
  15. J

    Shaking muscles and second opinion

    I have confirmed areas from my neuro (along with soft palate weakness) but with my previous emg being ok they aren’t sure where that leads, so they’re referring me to als neuro in Kansas City for further testing/work up. I don’t think that I’ll update on here after that appointment because I...
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