Recent content by jschex

  1. J

    MMN or MND? Are they the same?

    Ok. Second question. Is MMN a form of ALS? Or, a motor neuron disease/disorder? The CIDP/GBS Foundation considers MMN a variant of CIDP, which was part of my original diagnosed. Most of what I can find online is conflicting.
  2. J

    Confused after reading neuro's notes

    I have hyper reflexes in both legs. I was on IVIG monthly, but now I am at biweekly and cannot go longer. We've tried twice to push the infusions back out to a month and both times I wound up right back in a wheelchair.
  3. J

    Confused after reading neuro's notes

    Sorry for any typos. I have very limited feeling in my fingers. Typing isn't great.
  4. J

    Confused after reading neuro's notes

    I recently asked for and read through my neuro's case notes on me, which confused me more than ever about what my diagnosed may, or may not be. Let me preempt this comment by saying he's triple board certified in Neurology, Neuromuscular medicine and Immunology. His notes state: "CSF showed high...
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