Recent content by js58

I didn't think the advice given to her applied to me in any way. I don't enjoy feeling crappy, and when I figure out how to pay for the O2, I will get it. I have figured out why I don't post here very often.

Just a thought. Our son is in the military and would like to live closer to be a part of whatever is happening medically with me. Maybe your son would like to also. And...must add this - I've gotten a few sharp comments on here, but the majority have been caring and concerned, and I have no...

I posted a while back about doc wanting me on O2 full time because of sats in the 70s when walking. I have not been diagnosed with anything, and may not ever be. But...I am concerned if I go on O2 now, where do I go from there? Am thinking about using it at night. Hard to know best way to go.

thanks. like I said, I may never know for sure what's happening, but I knew you folks would understand. Thank you -thank you.

I'm sorry - I was so down when I posted, I forgot what I was going to ask :)

I've posted several times; last one was about my EMG results which could'nt rule out early motor neuron disease. I have no diagnosis & I may never get one but at this point it doesn't really matter because my O2 is dropping more often, lower and then longer recovery time to get back to 90%. My...

Patty, that stinks. I am so sorry. That's just not right. J

Patty, so sorry to hear this. I have an idea of part of what you're going through. During my last 6 min. walk, my O2 dropped to 83% and I walk a lot at work. Rheumatologist I saw last Friday said I have to go back to national Jewish (pulmonologists) and see about oxygen. Well I would, but after...

I do have a personal O2 monitor and it is helpful. National Jewish is basically the best in lung disorders around our area. PFTs are okay. My asthma is well controlled and there is no fibrosis in my lungs which is why my doc sent me there in the first place. My first 6 min rehab walk the lowest...

Neuro is sending EMG results to National Jewish (pulmonologists) and at some point, I will have follow up with them. The neuro who did the EMG mentioned she thought an EMG of the diaphragm would be a good idea, but nothing more has been said. Thank you for answering.

Hi. I posted a while back about being referred to neuro following a visit to National Jewish. Aspiration has worsened and respiratory muscles getting weaker with O2 dropping more during exercise. So went to neuro-he thought it might be MG and ordered an EMG. EMG results show chronic partial...

Hi.You aren't alone with this. Our son, 24 years old, found out through an MRI he has degenerative arthritis throughout his spine. He played football in high school, is a runner and in great physical condition. Age doesn't matter with arthritis. He is doing well at this time and is more aware of...

I am sorry to hear your wife is going through a bad time. I do know a little about myositis as I was diagnosed with it in 2000 and that certainly sounds like a possibility with your wife's biopsy results. I do know myositis can cause some atrophy. My pulmonary function tests have been pretty...

Thanks for all the answers. Aly, I agree with what you are saying and have wondered about that. Even if there is nerve damage in my tongue due to the nerve in the neck area, it doesn't address the muscle weakness. And that's what the EMG showed. Thank you all again. I will contact neuro next...

Hi. I posted some time ago about National Jewish referring me to a neurologist because my swallowing and breathing muscles seemed to be weakening more than would be expected with myositis. Neurologist had EMG done that showed weakness in tongue and neck. He called and told my husband there was...