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  • Painful ALS?? my husband is currently in the hospital (past 4 weeks)..with pneumonia. He is 'stable', on a ventillator, and the hospital wants to send him to L-TAC(long-term acute care) where I can stay with him!! Moving is very painful for him!! Is movement painful for some ALS patients? he can only move his head & rt fingers...How can I help him? I have been doing ROM--range of motion..Does the pneumonia ever 'go away'(he's had 12 bronchoscopes)..I've heard weaning off the ventilator is VERY hard foe ALS people.....can it possibly be done? --- befudled----
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