Recent content by jpier

  1. J

    I need everyones input, please! I am scared, tired, and frustrated.

    Sounds lots like my case,you got a long road ahead. My anxiety and depression are in check ...my symptoms are still going strong. I also twitch after flexing a muscle,I don't think thats ALS specific. The neuro referred me to the psychiatrist,now the psychiatrist refereed me back to the neuro ...
  2. J

    Bulbar onset questions and concerns.

    Neuro appointment tomorrow
  3. J

    Bulbar onset questions and concerns.

    I been off the forum for months. Been on "treatment for more then 20 months,pills,therapy,massages,exercise,salt baths,etc,etc...nothing seems to improve. Taking anxiety depression meds for more than a year plus therapy. I hope this is all a mind trick and nothing more.
  4. J

    Bulbar onset questions and concerns.

    Hi,I been seeing him for the last few months. He prescribed some sleep med and something for twitching.
  5. J

    Bulbar onset questions and concerns.

    Maybe the bulbar symptoms are the weakness? Btw they're pretty scary.:?:
  6. J

    Bulbar onset questions and concerns.

    Hi,I been seeing him for the last few months. He prescribed some sleep med and something for twitching.
  7. J

    Bulbar onset questions and concerns.

    Btw 38 yrs old male. Normal clinical exam.
  8. J

    Bulbar onset questions and concerns.

    Hi,I been having symptoms since about 26 months. Last EMG done 2 months ago,was normal got diagnosed with BFS. Ok,symptoms keep going south, weakness Not clinical but i can tell difference.( perceive?) Slurred speech,voice change ,twitching face,neck,tongue. Tongue feels heavy ,pain on back of...
  9. J

    40 year old - worried I may have ALS

    Any updates?
  10. J

    Doctor told me it is not als

    Hi, you got positive ANA test.?
  11. J

    worried

    Twitching + Dr Google = ALS forums .
  12. J

    40 year old - worried I may have ALS

    Go see a Rheumatologist ASAP. ...you welcome!
  13. J

    is this als?

    Hi, i suffered from severe guillain barred about 10 years ago.Never recuperated 100% from it.spent almost 3 years from onset to walking again without aids.saw 2 friends die from it.lucky u for getting mild type.Go on an enjoy life cause u got another chance at it.
  14. J

    Hi, Going to call Dr Joseph tomorrow and try to get an appointment because my appointment at...

    Hi, Going to call Dr Joseph tomorrow and try to get an appointment because my appointment at mayo is on Sept. Well Ill tell you this...that's the same thing Dr Vu has been saying to me for the past 7 months, And all tests seem fine even EMG's .I started having symptoms for a year now. BUT... I'm...
  15. J

    What is wrong with me?

    Hi,sounds like we have same symptoms, how about time frame? ...I'm 36.
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