Recent content by JPatricia

Today we saw my boyfreinds doctor and he mentioned masitinib. From what i have seen on it it seems like it is another medicine like riluzole. My question is what is the difference? And just curious of any opinions on it rather its something he should try or not. He was diagnosed in April...

what is tudca? My boyfriend of 6 years was recently diagnoed he is still early in the progression he has tongue fascinations, his speach has changed a lot and is mummbled, his hands and fingers shake a lot he sometimes drops things. Im not aware of a lot of medications yet butthe only...

Ok thank you. The doctors said his is bulbar onset as well started with togue fascinations and speech change. That and his hands shaking are the 2 big things that we have seen change so far over the past 5 months or so.

I know most people know the answer to this but my boyfriend of 6 years was diagnosed a few months ago and i am still trying to figure all of this out. Its a lot to learn and google isnt always the best source. My boyfreind's hands shake a lot and when he holds them out his fingers like...

My boyfreind of 6 years who is 27 is seeing als specialist who says it looks like he has als neurologist already said his diagnosis is early stages of als. So we have lately been having a lot of discussion about if we should have another baby we already have one little boy who is 20 months(i am...

Ok thank you to everyone who replied i did do a lottle research n saw the same thing. He is not working so we r in the proccess of trying to get disability and from what i saw online our son should get something for that too so im pretty sure between that and my income it will be too much. Its...

My boyfriend of 6 years and father of my son who is 27 is going through the proccess of being diagnosed with ALS. The neurologist has already said his diagnosis is early stages of als and we are now seeing an ALS specialist who said it looks like ALS but he wants to go over the ct and mris with...

Ok thank you and ya once the neurologist diagnosed he set us up with the als specialist but its in the same location but i deffenitly want another opinion my boyfreind on the other hand thinks if both the doctors say its als then thts enough i was looking at someone in Syracuse but ill have to...

Ill have to try to find one from the research iv done the one we r seeing now is the best in rochester ny where i am ill have to look again thank you

Re: My Boyfriend of 6 years who is 2727 in the proccess of being diagnosed with ALS He is seeing the neurologist and als specialist through strong hospital which is the best place to go in the area we are in...and the als specialist we saw said right now there are no trial tastings excepting...

Hi I am 24 years old my boyfrind is 27 and has been having signs of ALS.This all started 2 months ago he came up to me n was like liok at my tongue it keeps shaking which we now know are called faciculations so i made him go to the hospital he said he thought it was normal but i told him it...