Recent content by Joy's Daughter

  1. J

    This is really hard

    Oh, thanks. I appreciate the info.
  2. J

    This is really hard

    Thank you for saying that. I had a angry meltdown last night. The final straw was when I tried to get on this site, but forgot my password, and I tried 3 times and could not get back on. For some reason it worked tonight. My family and I wonder, if mom is progressing so quickly, and this...
  3. J

    This is really hard

    I have not heard of bulbar?
  4. J

    This is really hard

    Thank you so much. It feels like there is too much to be able to know what mom needs before its too late. I found out that her fast decline is the pattern we are going to be seeing. She is already on a Trilogy machine, and using it more and more. I can't seem to get organized. I hate feeling...
  5. J

    This is really hard

    Hi, my name is Susan. My mom was diagnosed just last month. She is 74. In less than a month, we have taken her to the University of Virgina to confirm her ALS diagnoses, prepare for her feeding tube procedure, the ALS clinic and then the procedure for the feeding tube. This was all between...
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