Recent content by JOY

  1. J

    ALS FUNDRAISER IN MONTREAL

    :lol: this is my little brother brian he is the youngest member of our 9 siblings, i am very proud of his efforts to continue to fight for this disease when we lost our brother Craig in June 2003, little did we know that the loss to als would be a continue haunting of our heart, none like it...
  2. J

    Missing you all

    :oops: Sorry I have not been around to post but have lost my server connection :roll: sortof financially challenged these days. Hope to be back soon. Just to let you John and Henry know I have signed up for a Fund Raising Management Course at our local colleage, and am hoping to be able to...
  3. J

    Hello

    Hello Kim I am very sorry to hear about your dad, glad you found this site it can be helpful in directing you to the help your family will need soon. Two days is not alot of time to digest this horrible news. How is his condition? Hope you are getting support from your local chapter in your...
  4. J

    My Mom Passed Away

    Hi Johnny You truly are the hero here and Rita I can share your feelings of wanting John to stay as long as he can with you and your family. My thoughts and prayers are with you both and thank you for sharing your story with us. Johnny I hope you remain comfortable and surrounded by your...
  5. J

    My Mom Passed Away

    Johnny I think the end is a very personal choice for all of us, because of the unknown we tend to be afraid to let go of this physical body and life leaving the people who are comforting us and caring for us and who we love and who love us. How to make this choice must be a daily struggle for...
  6. J

    My Mom Passed Away

    Hi Johnny No it is not rude for you to ask at all, the breathing is a voluntary muscle control which as you know is the reason for people suffering from als to loose control of their body functions such as all movement in areas effected by voluntary muscle actions. When Debbie described her...
  7. J

    ALS questions from a published neurology researcher

    Hello Bobbie As far as my brother was concerned the only problem he had with his eyes was a burning sensation and his eyes watered alot, I had to constantly wipe them for him as his tears seemed to burn his eyes. He had vision problems from an early age he got glasses during his teen years. Joy
  8. J

    New Member surprised by support !

    Hi Jack welcome to the site you are right there are alot of good people here ready to lend support when needed. We all have a connection of sorts with this horrible disease and know the course it takes and the pain the suffers and their family members go through. Caregiving is a 24 hour job...
  9. J

    new at this

    :) Welcome to this site fisher, I am sure you will meet lots of friends here who can help keep you company with this horrible disease. Hope you are connected with a great ot who is helping you and that the als clinic in your area is caring for you. There are alot of great people here who are...
  10. J

    My Mom Passed Away

    Dear Debbie I am so sorry for you and your family when we loose a loved one to this dreadful disease it is so bitter sweet. Knowing that your mom no longer suffers from the indignity that als can carry with it is solace, but loosing someone when we are all so hopeful for a cure to come for us...
  11. J

    being comfortable in bed

    :P Hi all, hope you had a wonderful and exhausting holiday season seems to take the sting out of life when you fall into bed exhausted from a season that allows you to give freely to everyone a present and its not their birthday i love it. I make most of my gifts and giving them to all my...
  12. J

    grieving als alone

    :lol: Thanks Johnny :P
  13. J

    grieving als alone

    Hi Karen; I am sorry to hear about your situation, I assume that your boyfriend has been separated from his former wife and children and now may have some regrets around this facing the end of his life as he must do. Sometimes people make choices in life and live with regrets and never have a...
  14. J

    being comfortable in bed

    :cry: John, my heart went out to you and your wife after reading your post on this thread. After being a care giver for my brother I can understand your fears about being left in the care of someone else who cannot anticipate your needs. I did not like leaving my brother with others and he...
  15. J

    new member

    Hello Diane Thanks for the posting with all that is involved with this disease it is not surprising to me to learn something more can be taken away. How cruel, I hope you and your sister stand together as you face your dad's illness. It is good to have the support of someone to go through this...
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