I am speachless to hear this terrible news. My dear Iris was a true doll. Now she will fully understand how much she was cared for. I haven't been here much in the last year but have never forgotten anyone, especially Iris. You will be missed. I will cherish you forever.
Roxie, I am sorry you are going thru this. I know exactly how it is to hit a wall everytime you turn around. My mother in law's insurance wouldn't cover in home care. We did get an aide thru our local ALS clinic but like you, she couldn't suction or do her feeding tube and that was what we...
July 31 my MIL Barb started her new journey. ALS took her body but never took her spirit. Barb fought hard and never let this monster overrule her life. She was a beautiful soul from the first day I met her and until the end. I must tell you I think she picked her own day to start her new...
Sorry, A nurse came in today and Barb didn't have her chart on her lap and she was trying to tell her what she wanted and after the 3rd time the nurse told her she didn't understand her and walked out. That is just one of the problems but they will understand tomorrow. These problelms have...
Things at the nursing home arent going so well. Most of the nurses have never cared for someone who has ALS. We are finding out that alot of nurses don't fully understand ALS. We have had several rounds and tomorrow will be another. The one head nurse made Barb a new ABC chart and another...
You all are amazing. I completely agree with everyone. Iris, you are a truly amazing person. You were one of my first friends here. When we talk you only seem to care how I am doing or how my family is doing. You will never know how much I seek your wisdom, and admire your humor through...
Hi honey, I was wondering if you could please update you sold paintings. I really would love to have one but am not sure what you still have. I was also wondering how you are? I got your PM and I added a new thread to give everyone and update. It has been hard and very sad here. Love from...
Just wanted to give you all an update on my MIL. She had a very nice 2 week visit with her sister and brother in law. They took care of her while we worked but we saw a hugh progression in her right hand and arm and her left leg while they were here. We were surprised that they noticed. We...
I was told by a lady I work with about the CVS fundraising. I had to stop at ours last night and when I checked out I used cash and the cashier didn't ask me if I wanted to donate. So I asked her about the fundraising, she said yes would I like to donate. Of course I said yes, then she said...
I have been missing you. I hope you and your family are doing well. I don't have much time to visit here with the way things are. I wanted to update you. My sister in law has decided she can't or won't help provided care her mother any longer. Things are progressing quickly and I can't...
Hi Kari, I wanted to give you and update. My sister in law has now choosen to NOT help care for her mother any longer. Things are in a whirlwind here right now. I have very little time to visit here any more which is not good for me. I miss my family and friends here. I hope all is well...
Thanks for all the replies. Sorry it has taken a few days to reply. Each and everyone of you always give great advise and truly understand. I would be completely lost without this site. Love to all Josie
Thanks for all the input. She has 2 different kind of cushions but they just aren't working. She has a highback wheelchair but not a powerwheel chair. Her hands and arms are of no use to her. I don't know why the insurance got her this chair other then she needed it for the support of her...