Recent content by jojo1964

  1. J

    Afraid I have bulbar ALS earliest symptoms.

    Thank you for your thoughts everyone. I have been to a general practioner and GI three weeks ago because I thought the shortness of breath and voice changes had to do with Gerd. I have been taking a Ppi daily and no change. The saying words incorrectly has me concerned. This is only as of last...
  2. J

    Afraid I have bulbar ALS earliest symptoms.

    I did reply to this a few minutes ago but also I find I can't formulate a word correctly at times. I say a word wrong and repeat myself to correct myself. Voice is getting more raspy
  3. J

    Afraid I have bulbar ALS earliest symptoms.

    I had posted back in 2013. I had seen a neurologist back then. Did all the tests. Did find some weakness in my left leg and arm still there today. Did everything but a lumbar fluid test. Now experiencing some difficulty breathing st the lower diaphragm and vocal chord sounds rattling or it feels...
  4. J

    Afraid I have bulbar ALS earliest symptoms.

    A few years ago I had tests done to try to rule out ALS as a result of having ongoing weakness on the left side of my body and twitching. The weakness was confirmed by a neurologist but nothing was found. Fast forward 4 years and now i am experiencing a need to continuously swallow, a feeling...
  5. J

    I had my neruo visit with results of emg and spine and thoracic MRI. No lesions. Still have...

    I had my neruo visit with results of emg and spine and thoracic MRI. No lesions. Still have clinical weakness in my leg and I do feel weak in my arm. I have noticed that I swallow a lot of saliva and the lump in my throat along with intermittent hoarseness is still there. Dr. Held off on lumbar...
  6. J

    Hi Steve, I had my neruo visit with results of emg and spine and thoracic MRI. No lesions...

    Hi Steve, I had my neruo visit with results of emg and spine and thoracic MRI. No lesions. Still have clinical weakness in my leg and I do feel weak in my arm. I have noticed that I swallow a lot of saliva and the lump in my throat along with intermittent hoarseness is still there. Dr. Held...
  7. J

    Hi Steve, Thanks for the reply. The EP's and the MRI of the thoracic and spine were negative...

    Hi Steve, Thanks for the reply. The EP's and the MRI of the thoracic and spine were negative. So no MS. However, I continue to have this feeling in my throat that is persistent and very annoying. It feels as if there is a lump in my throat and when I touch my throat it is exremely tight. I also...
  8. J

    Wondering if I have als

    Will do. I am still waiting even though all complete minus the lumbar puncture.
  9. J

    Wondering if I have als

    Thanks. I have had the MRI of spine and thoracic and emg exams I am waiting on results. I have a lumbar puncture at months end
  10. J

    Wondering if I have als

    In addition my voice is hoarse. I have to clear my throat a lot.
  11. J

    Wondering if I have als

    I ama 48 yr old female. In December started with shoulder blade pain. Went to chiropractor thru feb. at same time leg felt weird. Rubbery. I wasn't getting relief so I went to dr and checked my reflexes etc. shoulder blade pain subsided in April but still have arm and leg feeling not right. I...
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