Recent content by jojo

I want to wish all PALS and CALS a wonderful Christmas and a Happy and Healthy New Year. I also want to send a big "THANKS!" to all of you who share your experience and wisdom. I rarely post. However, I read often, learn much, and am comforted greatly. You are proof that angels are...

Laughing so hard....gasping for breath....must remember to breathe...

Dear Kim, I haven't noticed any correlation between pms and my als symptoms. Mind you, I'm one of the lucky girls whose pms is very mild.

Hey, gang. Joining in on the fun! 22/40 and 30/48 after 8.5 years symptom onset.

Dear Dana, One of the lovely gifts that ALS has brought me is the bladder control issue. My neurologist says that it is a rare but real symptom of ALS. I take Detrol (also called tolterodine tartrate), a drug that helps me control the urge incontinence somewhat. I also use disposable...

Re: new diagnosis - how to cope Dear COlisa, My heart reaches out to you and your family at this difficult time. As if it was yesterday, I remember the heartwrenching impact of my diagnosis on my family and friends. However, it got easier after I broke the news to them, as they rallied...

Hi there. Amongst the goodies that ALS has brought me is bladder incontinence. So I have a wonderful toilet called "Jasmin Washlet"; also called "Jasmin Toto". It has front and rear wash features that can be customized, as well as a built-in dryer and heated seat. Fabulous! They are...

Jbird, I have a cool mist humidifier in my bedroom, which really helps (I'm not yet at the stage of needing bipap). Also, I carry around a bottle of pure peppermint oil that I take a deep whiff of when I'm having a coughing fit - it helps to open up my passageways. Sometimes, I will put a few...

DSMode said Well put!

Oh yeah, TBear, wine definitely helps! Love and Light, JoJo

Dear Shelly, Hi there. Newbie on this site. Ditto everything Granny said - said it better than I could. Here is my situation... I was diagnosed Sept 2000, with symptoms from Sept 1997. Initial symptoms were slurred speech, some choking and drooling, dropping things, and tripping. It took...