Recent content by Johny

  1. J

    What does your Caregiver use when outside

    Just how fair does one work? I am a less 75 to 80 feet from the house. How is the VTech - Safe and Sound 1.9 GHz Digital Audio Baby Monitor, DM221?
  2. J

    What does your Caregiver use when outside

    Would one need a camera? Is there a Walk-a- Talky?
  3. J

    What does your Caregiver use when outside

    I would like to know what does your caregiver use when they are outside and the patient is in the house? There is times when I go outside to work in my garden and my wife is in the house and she needs my help, what would be the be the best devise to get so she could talk to me when I am outside?
  4. J

    ALS Director coming to my home

    Can someone please explain what the ALS Ass. does and why they like to come out to your home? As I have stated earlier my wife has ALS. I have no complaints for them to come out to my home, I just don't really understand all that takes place. I would take their help, but first I need to know...
  5. J

    U of M Clinic

    On Monday FEB.23 we took my wife to U of M and we could not believe how they care for their patients, it was more than we ever would have dreamed of. It was so far advanced than the Hospital and doctor we seen in December and January. The doctors truly care about their patients. Like I may of...
  6. J

    U of M Clinic

    Which is worst? There is so much to learn about all of this. Does the caregiver ever get rest? It sames as if I worry day and night. It sames as if I no longer sleep like I did before, is this normal? I break down when I talk about it or tell someone that she has ALS.
  7. J

    U of M Clinic

    Could the doctor may have misdiagnosed by wife, could she have MND? Is there a test for both of these test? Which one is the worst of the two?
  8. J

    Foldeasy Toilet Safety Frame

    We put new toilets in about 4 years ago and we put a high toilet in one bathroom and a regular one in the other and we do not use that one, we love the higher one, So I would think that the one from Home Depot. What do you have to do to contact the ALSA or what that agency is.
  9. J

    Foldeasy Toilet Safety Frame

    My wife is asking for a Foldeasy Toilet Safety Frame and I would like to know if anyone has one and which one is the best to get? Home Depot this one for $82.67 Windsor Direct Model # BKH-FE10P Internet # 203584365 Chat Offline Foldeasy Toilet Safety Frame in Gray and White An WalMart has this...
  10. J

    U of M Clinic

    What my wife does is a first step ( not sure what the name is but something like that) for 10 minutes, and than she does a medicine that you move your arms forward for 7 miniatures and backwards for 7 miniature, that she ride a bike for 15 miniatures not fast or hard just takening her time. on...
  11. J

    U of M Clinic

    No pain no gain is NOT true of ALS. If rehab is trying to strengthen affected muscles and or leaving her completely wiped out it is NOT good for her. When our muscles die from ALS there is no way to rebuild them and stressing them out risks accelerating the disease a lot of PT ( and other health...
  12. J

    U of M Clinic

    So far she can eat must of the food if not all of the food I make. She has to put some thicken in her water as far as hot tea or coffee she is Ok . Lima Beans and Pea's she has trouble eating, I think if I put them in a blender it might help. Any comments on this? She goes to rehab about 3...
  13. J

    U of M Clinic

    what is a peg ? What does PEG stand for?
  14. J

    U of M Clinic

    Johny is your wife having difficulty swallowing? YES On some foods she had a test done today and it show that she could drink liquids and some foods she chocked on it and she drink a liquid and it down the wrong pipe, and she did not cough the doctor could not believe it,
  15. J

    U of M Clinic

    Are you talking about the ALS patient or the caregiver? Does all ALS Clinic walk you through wat is about to take place?
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