Recent content by JohnT

I really appreciate the second opinion/first clinic guide Nikki. I am amazed you know the Drs at Tarrytown, NY (given you are in MA - where i am actually from originally). You are quite clearly an incredible, resourceful, kind person, as are many others here. I will see what appointment on the...

Ty for the kindness and understanding. My wife (who is amazing) said, ‘one day at a time.’ It is difficult to just ‘stay in the present’ because so much of life is forward looking, planning, forecasting. It just is. I keep saying to myself: ‘stop looking at this forum’ (even though its been...

Ty as always Nikki.

Hello again to all. First post in newly diagnosed ex ‘Early Stages.’ 12-28 was dirty EMG ‘you have MND. Go wait in main waiting room while i type up report. Good luck.’ 12-29 was official ‘you have als’ diagnosis from main neurologist. I have a follow-up slated for 1-11-22 at ColumbiaDoctors...

I am so so sorry to learn of not only yours but all off your family members affliction. I must come off as offensive. So forgive my wallowing. I am struggling (mightily) with my new reality and the myriad permutations that come with it - which includes, most importantly, what this will do to my...

Fresh off my 12-28-21 als diagnosis which was quick (diagnostic neuro exam on 12-22 and dirty emg/clean mri on 28th), struggling every minute with the enormity of the weight. I have four children-daughter 25, sons 22, 20, 16. They are all incredible and healthy persons. Have a soft date on next...