Recent content by JohnHMich

There have been some rough months in the middle. I have a grief counselor that I have been talking to about abandonment anger. But for the most part, things are improving. It’s a process.

It's been awhile with its ups and downs. I hope everyone is doing well in spite of the challenges. All the best, John

My wife, friend, and companion of three decades, Angela, died this morning freeing her from the suffering and indignities of ALS. Thank you all for your years of patience and wise counsel.

My wife is to the point where she cannot travel in the car. 2019 Kia Soul wheelchair conversion with rear manual ramp, auto retracting tyedowns Asking Price: 20,000 Mileage: 54,000 Exterior color: Grey Interior: Grey Contact: 734 9970404 Ann Arbor, MI

Amazingly we have made it to October. I have no idea how, really. I was sure the choking, cough box, suction routine was going to eventually be what ended things. But it has become rare again with a lot of fiddling. We are finally getting her pain and anxiety under control. Air hunger seems...

We are doing the anomalous symptom of the day lately. Today there was a cough assist useage that brought up bloody and orange mucus. We have been having trouble with secretions and have been trying different controls to limit and thin them. The nurse doesn't think its pneumonia. There was a...

It has been awhile since I have provided an update. We are starting to have issues with intake again. We have reduced her food and water to avoid problems with nausea, stomach pain and large differences between intake and output. Her skin issues are spreading around. Cyanosis in her toes and...

She got a pretty profound improvement from the morphine. It wasn't until then that she mentioned that her breathing was so compromised. It was all a big surprise to me that most of June she had been feeling air hunger. I think she wants to talk and is trying to get a morphine dose that lets...

The other question was sort of covered by @lgelb in a separate thread on titration. My wife tends to not use the Bipap during the day. At this point should we be treating the air hunger with morphine or by encouraging more bipap use? She gets about 2 hours off the bipap before she has been...

Anaphylactic shock was the concern. She describes her breathing effort off the vent and without morphine at 7 out of 10. On morphine at a 3.

We finally got ou act together after the last ALS clinic visit and hospice startup. Things are going pretty well. She is still getting fluids and Kate Farms thru the gtube. The BM problems have subsided. Most recently, we did a morphine test because she has a family history of not tolerating...

We just back from our ALS clinic visit on Wed and they reported a FVC 25% of predicted. I found it very demoralizing. My wife has a PEG and keeping her hydrated and giving meds is way easier. The wound care has been straightforward. I find the pulmonologists are vague about the relationship...