Recent content by john0812

Hello all - has anyone heard of, or tried this supplement?

Hi Jan, Not having any trouble (except for occasional fluid down windpipe I think) with liquids right now. I waas eating some soup for lunch the other day, fairly light soup with barley or rice or something small in it - that didn't seem to want to go down well. Tonigh my throat seems sore -...

Hi Hi Jan, Hang in there! Sorry you need to be here. I CAN relate. 51, 1st neuro visits in April - no denervation at that time. Funny, 'dead' feeling in arms. Pain in arms from weak muscles overtaxing stronger ones. Numb feelings. Fasciculations increasing in mumber. Swallowing...

Retire I also would retire if I had the option. I am self-employed and have no safety net whatsoever. You only get one shot a life, whether you have als or not. You may survive quite a bit longer not working. It may require other tough choices along the way but in my opinion - I would go...

Hi Sara, You are so young to have to worry about such matters. I am really sorry you need to be here. I empathize with your situation - whatever you decide to do - I pray that you don't get it. I am not yet diagnosed and have two of my own children (daughter 25 and son 24 soon) and a...

Hi Bubba, I've got signs also, but not yet diagnosed. I saw something on a fairly official ALS site that stated that the 'average' time from onset of symptoms to a definitive diagnosis of ALS was 2 years. Keep in mind that there are lots of different things that can explain symptoms, and it...

grateful Thank you Al and Tracy for your responses. I am grateful for them. My Naturopath made no claim that he could cure me. ** links removed** Part of the problem I suppose is that I have tried a whole bunch of things instead of one at a time. Anyways, I will continue the chelation...

Did I mention that I can type faster than I think! Before anyone begins to get upset, please understand the victim comments are all about me, nobody else ....

Tracy I have not been diagnosed (3rd EMG in 2 months) . I do have escalating symptoms, IE fasciculations, some throat issues but no choking as yet, muscle weakness particularly in thumbs, wasting. When I 1st went to my naturopath, he said that it can usually be cured, if caught early...

exercise continued Thanks Al, So will any muscle tissue develop? I had a frozen shoulder about a year ago and started seeing a physio for that, and it is now pretty much resolved. After that I saw her for neck (since related to shoulder), then arms (the neuro at the ALS clinic said I might...

Thanks Al! Thank you. Is exercise a good idea? - must admit I haven't done much lately. Still working, self employed, very busy, at times very stressful - I've often thought this job might kill me. How do you show city/province/country in profile? I'm smiling cause it's the weekend !

Hi there everyone! I am pre-diagnosis. I am Male, 51, and after procrastinating for perhaps a year (maybe more?) finally went to my doctor in early Feb 06 with fascic. in thumbs, some fingers, among other places. First Neuro visit led to 2nd at an ALS clinic. I've been in fear city ever...