Recent content by john McCarron

Dave I was told from the outset that this is disease is very variable and so it has proved not just to me but to many others. I was diagnosed in 2002. I still walk (not great distances), I go on holiday and still enjoy the odd beer. The early stages are the worst, mainly because you can have...

Allie Sorry about your lost, it seems to have happend very quickly. Volunteering is a great way to help and there are so many ways. Visting, helping to fill in forms or just talking are all great ways to help. I am so grateful to the volunters who have given up thier time for me in my location...

hi Azita & Al This was posted on a UK site and I though it may be of intrest. I have met a number of MND(ALS) people here in the uk who have have breathing problems resulting in thier quality of life being affected. I think it is concerning how medical care can vary from hospital to hospital...

I used to fall asleep and be tired during the day. I was also very restless at night time and only managed 1-2 hours sleep at a time. My consultant arranged for me to have a respiratory check and found that I had high levels of Co2 because of weaken chest muscles. I now use a Nippy at night with...

Hi Michele I have a weak chest and my cough is week, my physiotherapy has taught my wife and I couple of techniques called ‘assisted cough’ which helps. It's best if a professional shows you how, it quite simply to get the hang of it when shown.

Ronny I came across a possible contact:- Alison Bibb University Hospitals of Cleveland 11100 Euclid Ave. Cleveland, OH 44106 (216) 844-5018 [email protected] I donot know anything about these people, but I understand they were involved in the development of the device. If you have little...

Hi Ronny This was posted on a Build UK a fem months ago, hope it is of intrested. http://rdu.news14.com/shared/print/default.asp?ArID=76748.

Its quiet over here too! Soon the kids will be arriving 21 & 24 years then in-laws, and then the kids friends, total mayhem. We always say never again, but hopefully God willing maybe a few more. Peace and good wishes to all

Hi all Unfortunately this topic has been covered before, please have a look at the threads connected to BobbyB post dated 8th September 2005.

Hi I am going on holiday to day to date with the kid’s and my wife and I read your post. My son’s is a big lad just like his father used to be so he can handle my wheelchair without any problems. We are currently watching the cricket and England have at long last a chance to win (if they don’t...

Fotios Seeing as you like proverbs: I think it was Lyndon Johnson who was reputed to have said this: “I would rather have him peeing out of the tent, than have peeing in” So some people may not agree with you, on all issues and the way you present them (myself included) but if you want to...

When I was first diagnosed, the neurologist offered to me by way of consolation the fact “ MND (ALS) is extremely variable and will affect each person differently” During my journey I have found this to be, oh so true . However, there are some forms of ALS which are aggressive and the rate of...

Hi Really sorry to hear of your situation, and I can sympathises with your frustration. The average GP is very unlikely in their career to come across a case of MND and given your age this would only reinforce their view. The only advise I can offer, is to formally request a referral to a...

My wife suggested to me when I was diagnosed three years ago to get some physio, which I did. I went to a private clinic were they taught me about 20 different exercises which I was able to do at home. Some of the exercises really helped me with the cramps I was experiencing at night. On the...

This is a post that Jeannie made, which I hope is of interest. http://news.bbc.co.uk/1/hi/sci/tech/4155016.stm