Recent content by John Black

  1. John Black

    Yes, occasional tongue twitching too. You can imagine my photo feed from phone, its like...

    Yes, occasional tongue twitching too. You can imagine my photo feed from phone, its like hundreds 1-2 min videos of my tongue I used to record and rewatch right after to spot some twitching. I also had lip twitching after brushing my teeth.
  2. John Black

    All your symptoms from your thread I had. And it all was my anxiety. So I think you shouldnt...

    All your symptoms from your thread I had. And it all was my anxiety. So I think you shouldnt worry about it much. Again Im not saying nothing is wrong, Im not a doctor. But from my experience with ALS anxiety you at most have something like carpal tunnel syndrome.
  3. John Black

    I was so sure, that anxiety cant cause all of that, I tought to myself "Im not insane, anxiety...

    I was so sure, that anxiety cant cause all of that, I tought to myself "Im not insane, anxiety can cause some issues, but not like that, no way I would twitch literally hundreds of times a minute, had my fingers extend other way and etc". And all of that just disappeared once I got to the...
  4. John Black

    I had positivie babinski tested on myself, hofman tested until my finger was bloody, i literally...

    I had positivie babinski tested on myself, hofman tested until my finger was bloody, i literally destroyed my anckles testing reflexes and everything was abnormal
  5. John Black

    I was in the same boat for 4 months. My twitching was so severe, it was literally non-stop, not...

    I was in the same boat for 4 months. My twitching was so severe, it was literally non-stop, not for a second. After I did 3 EMGs, and visited like 5 or 6 neuros and let my fear slide a bit, I have literally zero twitching now.
  6. John Black

    Hope your issue is not serious and you ll be fine ;) Actually I saw tons of neurologist and...

    Hope your issue is not serious and you ll be fine ;) Actually I saw tons of neurologist and based on your thread, I bet you will be all right.
  7. John Black

    Hello, its fine. When I did my EMG my doctor said to me that I have pinched nerve but MRI showed...

    Hello, its fine. When I did my EMG my doctor said to me that I have pinched nerve but MRI showed nothing. Turns out I had muscles affecting it. It resolved after 1-2 months.
  8. John Black

    Concerned with tongue

    Hello. So I had my doc visit today and been told I do not have MND. Just in case she referred me to the second opinion doc in January but said its just a technical procedure and she doesnt suspect anything wrong. Well, my jaw still stiff as hell and yawning a lot. But probably thats what it is...
  9. John Black

    Well, from my EMG experience, the main thing about it is to form a contact with doctor...

    Well, from my EMG experience, the main thing about it is to form a contact with doctor performing it. Actually my doctor said it to me while doing it. EMG can be noisy for small reasons. My trapezius was noisy because of my shirt which I did not take off completely. But doctor did it second time...
  10. John Black

    Hi ;) I booked my visit at dec 7. No symptoms progression so far, so wanted to go as late as...

    Hi ;) I booked my visit at dec 7. No symptoms progression so far, so wanted to go as late as possible. I saw your update, glad that its positive, take care!
  11. John Black

    One cannot check spasticity. Only doctor can or at least another person. My jaw is kinda strange...

    One cannot check spasticity. Only doctor can or at least another person. My jaw is kinda strange it feels like the muscles is tight. But again you cannot test it yourself just like reflexes.
  12. John Black

    Hello, can i please ask you if your yawning problems resolved at the end ? ;)

    Hello, can i please ask you if your yawning problems resolved at the end ? ;)
  13. John Black

    Concerned with tongue

    Good day. I said that I'm gonna post only if I have some ALS news. So my doctor now referring me to neuromuscular specialist. Since I developed spasticity in jaw, that is a bit painful and feels like I constantly trying to keep myself from yawning or something. With questionable EMG and...
  14. John Black

    Concerned with tongue

    Hello, Nikki. I totally understand this and thank you so much for your time and help. When I re-read my last post it can come out a bit rude, but it's not what I wanted really ;) I'm just a bit cautious of this situation :) Thanks again for your time and effort to help others! I wont post there...
  15. John Black

    Concerned with tongue

    Hello Got my second EMG done. Attached the results so people with similar symptoms can check it out. Conclusion: Data from EMG suggest generalized primary-muscle process with slight accent on proximal muscles of the shoulder region and calf muscles. I'm kinda more optimistic now, since it's...
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