Recent content by joejoe75

  1. J

    Itchy skin?

    They took her off the patch Sat but she is still so itchy, the rash went down some but the itching is getting worse. Her arms are the worst and she can't move them to itch them so I feel so bad for her. They tried a new cream which works but only lasts awhile then it's back to itching. I just...
  2. J

    Itchy skin?

    Yeah but it doesen't mean you are wrong it could still have a connection with both. We are calling her ALS DR. Monday so we will hopefully know more so thanks for all suggestions. Joelle
  3. J

    Itchy skin?

    She actually has a full blown rash now all over her body so believe it is from her new med the pain patch so they took it off and we shall see. Joelle
  4. J

    Itchy skin?

    I mght try the oil that sounds like it could work, thanks for the help evrybody. Joelle
  5. J

    Itchy skin?

    My mom has ALS and FTLD she is constantly saying her skin itches all over. Some nurses told me it could be nerve twitching. Has anyone dealt with this , I'm thinking it might just be her dementia. I've tried every skin lotion, wash everything. Any thoughts? Thanks, Joelle
  6. J

    Anyone have experience with ALS and Frontal Temporal Dementia

    Mom's head meds My mom is on Zoloft and Seriquiel for her dementia. The Zoloft is depression the seriquiel is more for the dementia bi polar. Joelle
  7. J

    Anyone have experience with ALS and Frontal Temporal Dementia

    My mom has FTD I am the daughter of an ALS patient , my mom and also she has ftd. Okay here's what I know and have seen: it's definatly behavioral not memory related but it will make it difficult for you to make decisions alot of confusion in normal everyday things. It deals with the front of...
  8. J

    New? Introduce Yourself - Say Hello

    Sorry Didn't mean to repeat myself I did't see my post so I re did one thanks. Joelle
  9. J

    New? Introduce Yourself - Say Hello

    Hi I am 32 years old, my name is Joelle and my mom just got diagnosed with ALS in May. She is in a nursing facility, which is great everyone and she loves it there. We had here home but the disease accelerated so quickly it became unsafe for us to care for her at home. I'm just lonely and...
  10. J

    New? Introduce Yourself - Say Hello

    hi Hi everyone my name is Joelle I am new and my mother was recently diagnosed with ALS. She is in a facility was living with me but her disease progressed so quickly we had to place her somewhere she actually loves it there and is safe and getting great care. I am just having such a hard time...
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