Recent content by Jo123

  1. J

    As of Tuesday

    Hi Ryan, Sorry I did not see your post until now...How did the appt go? My Pals does go to froedtert quarterly, as I am sure you saw there are a wide team of Drs there that visit you in short time. They are more there to guide you and help you with the progression, answer any questions that...
  2. J

    As of Tuesday

    Hi Ryan, My Pals came across your post and showed me. I felt I had to write. My boyfriend was diagnosed 3 yrs ago at age 29 with ALS. We also lived in Milwaukee when h was diagnosed, probably lived within a few miles of you…We lived on the St. francis/MLE border right by Tippecanoe park. Since...
  3. J

    Bathroom remodel?

    Hi all, I was hoping to get your thoughts on bathroom and showering. We currently use bars around toilet and he can still slide from power chair to toilet but that is becoming quite difficult. For bathing we have a sliding shower bench that he slides onto seat from chair and then I slide it into...
  4. J

    New to Forum

    Thanks for the replies. I don't think that I am depressed but sometimes I just get those moments where I feel like NO ONE gets it or understands what I am going through. I am not married to my PALS but we were together for 5 years when he was diagnosed, it has now 8 years together and I don't...
  5. J

    New to Forum

    Hi all, Tonight was rough, although coming on here and seeing everyone with the same micromanaging issues did make me feel better. Sometimes I feel robbed of my life or a "normal" life. I'm 30 years old and a caregiver when i'm not working full time in a demanding career. Being a CAL is always...
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