Recent content by jmiah

  1. jmiah

    40m Concerns

    Not much else I can do besides sit tight. Unfortunately sitting tight has only resulted in loss of abilities, weakness, and worsening symptoms. I'm not convinced of anything in particular. I am open to any possibility. That said, if this is going to be something treatable, we are running out of...
  2. jmiah

    40m Concerns

    I am starting to think there is not much option besides ALS or other MND here. So far, my CSF testing has proven unfruitful, with the exception of >5 identical oligoclonal bands in CSF and serum. This points to a systemic issue. Autoantibody panel sent to Mayo was all negative. All other values...
  3. jmiah

    40m Concerns

    I'm hoping you're both right. Not sure as this has been perplexing and consuming. Thanks for your time. No treatment for the CLL yet and all the symptoms started after viral illnesses and treatment for erroneous potassium values. All lab values have been good except the usual white count issues...
  4. jmiah

    40m Concerns

    Hello all, I am humbled by your graciousness and service to the anxious folks out there with strange symptoms. I hesitated on posting for weeks, but here we are. I am 40m with a fairly long history of chronic lymphocytic leukemia (never treated) and some other ailments from my military...
  5. jmiah

    How are you doing now? I have essentially the same set of symptoms and no answers yet. I'm quite...

    How are you doing now? I have essentially the same set of symptoms and no answers yet. I'm quite concerned. Any insight?
  6. jmiah

    Wondering how you are doing now and if you ever got any answers?

    Wondering how you are doing now and if you ever got any answers?
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